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本文引用的文献

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Brain death, the determination of brain death, and member guidance for brain death accommodation requests: AAN position statement.脑死亡、脑死亡的判定以及脑死亡收容请求的成员指南:美国神经病学学会立场声明
Neurology. 2019 Jan 28;92(5):228-232. doi: 10.1212/WNL.0000000000006750.
2
A Conceptual Justification for Brain Death.脑死亡的概念论证。
Hastings Cent Rep. 2018 Nov;48 Suppl 4:S19-S21. doi: 10.1002/hast.946.
3
Brain Death: A Conclusion in Search of a Justification.脑死亡:一个寻求正当性的结论。
Hastings Cent Rep. 2018 Nov;48 Suppl 4:S22-S25. doi: 10.1002/hast.947.
4
Do the 'brain dead' merely appear to be alive?脑死亡者仅仅是看上去还活着吗?
J Med Ethics. 2017 Nov;43(11):747-753. doi: 10.1136/medethics-2016-103867. Epub 2017 Aug 28.
5
How to Communicate Clearly about Brain Death and First-Person Consent to Donate.如何清晰地沟通脑死亡及捐赠的第一人称同意问题。
AMA J Ethics. 2016 Feb 1;18(2):108-14. doi: 10.1001/journalofethics.2016.18.2.ecas2-1602.
6
Religious objections to brain death.对脑死亡的宗教异议。
J Crit Care. 2014 Oct;29(5):875-7. doi: 10.1016/j.jcrc.2014.06.017. Epub 2014 Jun 29.
7
"Brain death," "dead," and parental denial - the case of Jahi McMath.“脑死亡”、“死亡”与父母的否认——贾希·麦克马思事件
Camb Q Healthc Ethics. 2014 Oct;23(4):371-82. doi: 10.1017/S0963180114000048. Epub 2014 Jul 17.
8
Improving the family experience through presence at brain death evaluation*.通过参与脑死亡评估改善家属体验*
Crit Care Med. 2014 Apr;42(4):1002-3. doi: 10.1097/CCM.0000000000000253.
9
Family presence during brain death evaluation: a randomized controlled trial*.脑死亡评估期间允许家属在场:一项随机对照试验*。
Crit Care Med. 2014 Apr;42(4):934-42. doi: 10.1097/CCM.0000000000000102.
10
A national multicenter trial on family presence during brain death determination: the FABRA study.一项关于脑死亡判定期间家属在场的全国多中心试验:FABRA 研究。
Neurocrit Care. 2012 Oct;17(2):301-8. doi: 10.1007/s12028-011-9636-2.

基于神经学标准判定的死亡:在悲剧中关怀家属。

Death by Neurological Criteria: Caring for Families amid Tragedy.

作者信息

Stahl Devan, Tomlinson Tom

机构信息

Department of Religion, Baylor University, Waco, TX, USA.

Michigan State University, East Lansing, MI, USA.

出版信息

Linacre Q. 2019 Nov;86(4):394-403. doi: 10.1177/0024363919874957. Epub 2019 Sep 23.

DOI:10.1177/0024363919874957
PMID:32431431
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6880066/
Abstract

UNLABELLED

When a patient is declared dead using neurological criteria, intense emotional and ethical challenges can follow. In our experience as clinical ethicists, consults surrounding the declaration of "brain death" can be some of the most difficult. In what follows, we describe some best practices related to death by neurological criteria (DNC). We begin with important policies hospitals need to have in place to ensure that death is properly understood by all members of the clinical team and place some limits on the authority of families to demand continued "treatment" for deceased patients. Next, we explain how best to prepare families for the diagnosis. We then discuss how to talk to families when breaking the news concerning DNC. Finally, we describe how to approach a family that is resisting the determination of death.

SUMMARY

This article advises clinicians on how to talk to families about brain death.

摘要

未标注

当根据神经学标准宣布患者死亡时,随之而来的可能是强烈的情感和伦理挑战。根据我们作为临床伦理学家的经验,围绕“脑死亡”宣布的咨询可能是最具挑战性的一些情况。在接下来的内容中,我们将描述一些与神经学标准判定死亡(DNC)相关的最佳实践。我们首先阐述医院需要制定的重要政策,以确保临床团队的所有成员都能正确理解死亡,并对家属要求对已故患者继续进行“治疗”的权力加以一定限制。接下来,我们说明如何最好地让家属为诊断做好准备。然后,我们讨论在告知家属关于DNC的消息时该如何交谈。最后,我们描述如何应对抵制死亡判定的家属。

总结

本文就如何与家属谈论脑死亡向临床医生提供建议。