Conti Alessio, Clari Marco, Kangasniemi Mari, Martin Barbara, Borraccino Alberto, Campagna Sara
Department of Public Health and Pediatrics, University of Torino, Torino, Italy.
Department of Nursing Science, Faculty of Medicine, University of Turku, Turku, Finland.
Disabil Rehabil. 2022 Apr;44(7):991-1006. doi: 10.1080/09638288.2020.1783703. Epub 2020 Jun 30.
To systematically identify, evaluate, and synthesise the qualitative literature on the self-care behaviours, skills, and strategies performed by individuals with spinal cord injury (SCI).
The Joanna Briggs Institute (JBI) meta-aggregation method was followed. The search was conducted on five databases and limited to papers published from January 2000 to March 2020. Two independent reviewers screened, extracted the data from, and assessed the methodological quality of selected papers using the JBI qualitative assessment and critical appraisal instrument.
Eleven qualitative papers were included. Three synthesised findings with a moderate level of confidence emerged from 90 findings: people with SCI perform self-directed or directed-by-other behaviours focused on their physical condition (i); and on their social life (ii); people with SCI perform self-directed behaviours focused on their emotional well-being (iii). Individuals with SCI are aware of their condition and incorporate self-care behaviours into their routine to maintain health and prevent complications.
This meta-synthesis provides evidence on the self-care behaviours performed by people with SCI to prevent, control, and manage the physical, emotional, and social effects of their condition. These findings may help healthcare providers to understand the self-care process in SCI survivors and tailor educational programmes to their experiences.IMPLICATIONS FOR REHABILITATIONSCI survivors are directly responsible for their health and must reach their maximum level of independence by acquiring self-care behaviours and adjusting them over time.Self-care behaviours must be incorporated into SCI survivors' daily routine to maintain their condition, promote their social participation, and prevent complications.Caregiver contributions to self-care should be given more value, as these are fundamental to maintain SCI survivors' well-being and social participation.
系统识别、评估和综合关于脊髓损伤（SCI）患者自我护理行为、技能和策略的定性文献。
采用乔安娜·布里格斯研究所（JBI）的元聚合方法。在五个数据库中进行检索，检索范围限于2000年1月至2020年3月发表的论文。两名独立评审员使用JBI定性评估和批判性评价工具对选定论文进行筛选、数据提取和方法学质量评估。
纳入了11篇定性论文。从90项研究结果中得出了3项置信度为中等的综合研究结果：脊髓损伤患者会进行以自身身体状况为重点的自我导向或他人指导的行为（i）；以及以社交生活为重点的行为（ii）；脊髓损伤患者会进行以自身情绪健康为重点的自我导向行为（iii）。脊髓损伤患者了解自己的病情，并将自我护理行为纳入日常生活以维持健康和预防并发症。
这项元综合研究为脊髓损伤患者为预防、控制和管理其病情的身体、情感和社会影响而进行的自我护理行为提供了证据。这些研究结果可能有助于医疗保健提供者了解脊髓损伤幸存者的自我护理过程，并根据他们的经历调整教育计划。对康复的启示
脊髓损伤幸存者对自己的健康直接负责，必须通过掌握自我护理行为并随着时间的推移进行调整，以达到最大程度的独立。
自我护理行为必须纳入脊髓损伤幸存者的日常生活中，以维持他们的病情、促进他们的社会参与并预防并发症。
应更加重视护理人员对自我护理的贡献，因为这些对于维持脊髓损伤幸存者的幸福感和社会参与至关重要。
