Petukhova Tatyana A, Wilson Britney N, Gadjiko Mariam, Lee Erica H, Wang Jennifer, Rossi Anthony M, Nehal Kishwer S
Dermatology Service, Memorial Sloan Kettering Cancer Center, NY.
Dermatol Online J. 2020 Mar 3;26(3):13030/qt27k6w5b2.
The expanding role of social media in medical care has resulted in dermatology patients seeking support online regarding personal experience with diagnosis and treatment of skin cancer. Owing to increased privacy settings in closed Facebook groups, the current study analyzed themes of keratinocyte carcinoma patients' posts within a relatively private social media network. Although the majority of messages included sharing personal experience and provided psychosocial support (50%), there were a significant number of posts offering medical advice (35%), with the majority of such replies being unsupported by evidence-based medicine (87%). The level of medical misinformation and potential harm to patients seeking advice online is important for medical practitioners treating skin cancer and provides impetus for possible further research into online support and education groups that are moderated for misinformation.
社交媒体在医疗保健领域作用的不断扩大，导致皮肤科患者在网上寻求有关皮肤癌诊断和治疗个人经历的支持。由于封闭的Facebook群组中隐私设置的增加，本研究分析了在一个相对私密的社交媒体网络中角质形成细胞癌患者帖子的主题。尽管大多数信息包括分享个人经历并提供心理社会支持（50%），但仍有相当数量的帖子提供医疗建议（35%），其中大多数此类回复缺乏循证医学支持（87%）。医疗错误信息的程度以及对在线寻求建议的患者的潜在危害，对于治疗皮肤癌的医生来说很重要，并为可能进一步研究针对错误信息进行管理的在线支持和教育群组提供了动力。
