Stolee Paul, Ashbourne Jessica, Elliott Jacobi, Main Sarah, Holland Nicole, Edick Cole, Ropp Courtney, Tong Catherine, Bodemer Sheila
School of Public Health and Health Systems, University of Waterloo, Waterloo, Ontario.
Can J Aging. 2021 Sep;40(3):436-450. doi: 10.1017/S071498082000015X. Epub 2020 Jul 7.
We present the development of a regional dementia strategy in Southwestern Ontario, Canada. We worked with stakeholders in a regional health authority to develop a dementia strategy. We conducted interviews with persons with dementia and their care partners (n = 26) and health care administrators and policy makers (n = 33); and administered a priority-setting survey (n = 64). Both participant groups identified provider compassion, professionalism, and care in the early stages of dementia as system strengths. Both groups also highlighted a need for more integration and coordination, a need for more person-centred care, support for care partners, and more flexibility in the provision and receipt of services. The highest-ranked priorities were improving care partner support, improving access to care, and improving system-wide quality. We integrate these strengths, needs, and priorities in a strategic framework, "Whole Person, Whole Journey". Organizations developing a dementia strategy may use this framework as a springboard for their own work.
我们介绍了加拿大安大略省西南部地区痴呆症战略的制定情况。我们与地区卫生当局的利益相关者合作制定了一项痴呆症战略。我们对痴呆症患者及其护理伙伴(n = 26)以及医疗保健管理人员和政策制定者(n = 33)进行了访谈;并开展了一项确定优先事项的调查(n = 64)。两个参与群体都将痴呆症早期阶段医护人员的同情心、专业精神和护理视为系统优势。两个群体还强调需要更多的整合与协调,需要更多以患者为中心的护理,对护理伙伴的支持,以及在服务提供和接受方面更具灵活性。排名最高的优先事项是改善对护理伙伴的支持、改善获得护理的机会以及提高全系统的质量。我们将这些优势、需求和优先事项整合到一个战略框架“全人全程”中。制定痴呆症战略的组织可以将这个框架作为自身工作的出发点。