Laboratory of Parasitic Diseases, Institute Oswaldo Cruz/Fiocruz, Rio de Janeiro, Rio de Janeiro, Brazil.
National Institute of Women, Children and Adolescent Health Fernandes Figueira/Fiocruz, Rio de Janeiro, Rio de Janeiro, Brazil.
PLoS One. 2020 Jul 7;15(7):e0235010. doi: 10.1371/journal.pone.0235010. eCollection 2020.
Since 2015 Brazil has experienced the social repercussions of the Zika virus epidemic, thus raising a debate about: difficulties of diagnosis; healthcare access for children with Zika Congenital Syndrome (ZCS); the search for benefits by affected families; social and gender inequalities; and a discussion on reproductive rights, among others. The objective of this article is to analyse access to specialized health services for the care of children born with ZCS in three North-eastern states of Brazil. This is an exploratory cross-sectional study which analyses recorded cases of microcephaly at the municipal level between 2015 and 2017. Most of the cases of ZCS were concentrated on the Northeast coast. Rio Grande do Norte and Paraiba had the highest incidence of microcephaly in the study period. The states of Bahia, Paraiba and Rio Grande do Norte were selected for their high incidence of microcephaly due to the Zika Virus. Socio-territorial vulnerability was stratified using access to microcephaly diagnosis and treatment indicators. The specialized care network was mapped according to State Health Secretaries Protocols. A threshold radius of 100 km was stablished as the maximum distance from municipalities centroids to specialised health care for children with microcephaly. Prenatal coverage was satisfactory in most of the study area, although availability of ultrasound equipment was uneven within states and health regions. Western Bahia had the lowest coverage of ultrasound equipment and lacked health rehabilitation services. ZCS's specialized health services were spread out over large areas, some of which were outside the affected patients' home municipalities, so displacements were expensive and very time consuming, representing an extra burden for the affected families. This study is the first to address accessibility of children with microcephaly to specialised health care services and points to the urgent need to expand coverage of these services in Brazil, especially in the northeastern states, which are most affected by the epidemic.
自 2015 年以来,巴西经历了寨卡病毒疫情的社会影响,由此引发了一系列争议:诊断困难;寨卡先天性综合征(ZCS)患儿的医疗保健获取途径;受影响家庭的利益诉求;社会和性别不平等;以及对生殖权利的讨论等等。本文的目的是分析巴西东北部三个州为照顾患有 ZCS 的儿童而获得专门保健服务的情况。这是一项探索性的横断研究,分析了 2015 年至 2017 年期间市级别的微头畸形记录病例。ZCS 的大部分病例集中在东北部沿海地区。在研究期间,北里奥格兰德州和帕拉伊巴州的微头畸形发病率最高。巴伊亚州、帕拉伊巴州和北里奥格兰德州因寨卡病毒而被选中,因为它们的微头畸形发病率很高。利用微头畸形诊断和治疗指标对社会-领土脆弱性进行分层。根据州卫生部长的协议对专门护理网络进行了映射。设定了 100 公里的半径阈值,作为从市心到儿童微头畸形专门医疗保健的最大距离。在研究区域的大部分地区,产前覆盖率都令人满意,尽管州和卫生区域内超声设备的可用性参差不齐。巴伊亚西部地区的超声设备覆盖率最低,缺乏康复服务。ZCS 的专门保健服务分布在很大的区域,其中一些区域在受影响患者的家乡市之外,因此搬迁费用昂贵且非常耗时,这给受影响的家庭带来了额外的负担。这项研究首次探讨了微头畸形儿童获得专门保健服务的可及性,并指出巴西,特别是受疫情影响最严重的东北部各州,迫切需要扩大这些服务的覆盖范围。