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The lingering crisis: gaps in long-term care for children with congenital Zika syndrome and their families in Brazil.

作者信息

Martins-Filho Paulo Ricardo

机构信息

Universidade Federal de Sergipe, Hospital Universitário, Laboratório de Patologia Investigativa, Aracaju, Sergipe, Brazil.

出版信息

Rev Inst Med Trop Sao Paulo. 2025 Jun 9;67:e36. doi: 10.1590/S1678-9946202567036. eCollection 2025.

DOI:10.1590/S1678-9946202567036
PMID:40498910
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12148329/
Abstract
摘要

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The lingering crisis: gaps in long-term care for children with congenital Zika syndrome and their families in Brazil.持续的危机：巴西先天性寨卡综合征患儿及其家庭长期护理方面的差距。
Rev Inst Med Trop Sao Paulo. 2025 Jun 9;67:e36. doi: 10.1590/S1678-9946202567036. eCollection 2025.
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Health demands and care of children with congenital Zika syndrome and their mothers in a Brazilian state.巴西一州先天性寨卡综合征患儿及其母亲的健康需求与照护。
BMC Public Health. 2020 May 24;20(1):762. doi: 10.1186/s12889-020-08880-6.
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"A Daily Born and Dying": Dynamics of Affective-Semiotic Self-Regulation Involved in Early Intervention Practices with Children with Congenital Zika Virus Syndrome.“每日新生与消逝”：先天性寨卡病毒综合征儿童早期干预实践中情感符号自我调节的动态变化。
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N Engl J Med. 2022 Feb 24;386(8):757-767. doi: 10.1056/NEJMoa2101195.
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Congenital Zika Syndrome-Assessing the Need for a Family Support Programme in Brazil.先天性寨卡综合征-评估巴西建立家庭支持计划的必要性。
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Juntos: A Support Program for Families Impacted by Congenital Zika Syndrome in Brazil.《联合：巴西先天性寨卡综合征家庭支持计划》。
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J Clin Sleep Med. 2023 Oct 1;19(10):1759-1767. doi: 10.5664/jcsm.10674.
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[Primary care in the context of the Zika epidemic and congenital Zika syndrome in the state of Pernambuco, Brazil: context, bond and care].[巴西伯南布哥州寨卡疫情及先天性寨卡综合征背景下的初级医疗保健：背景、联系与照护]
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本文引用的文献

1
Zika virus: advancing a priority research agenda for preparedness and response.寨卡病毒：推进针对防范与应对的重点研究议程
Lancet Infect Dis. 2025 Jul;25(7):e390-e401. doi: 10.1016/S1473-3099(24)00794-1. Epub 2025 Feb 27.
2
[Access of children with congenital Zika virus syndrome to public policies].[先天性寨卡病毒综合征患儿获得公共政策支持的情况]
Cad Saude Publica. 2025 Feb 7;40(12):e00014624. doi: 10.1590/0102-311XPT014624. eCollection 2025.
3
Rehabilitation Practices Delivered by Physical and Occupational Therapists to Brazilian Children With Congenital Zika Syndrome: A Cross-Sectional Study.物理治疗师和职业治疗师为巴西先天性寨卡综合征儿童提供的康复实践：一项横断面研究。
Glob Health Sci Pract. 2023 Dec 22;11(6). doi: 10.9745/GHSP-D-23-00219.
4
The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID-19 pandemic.全球疫情爆发带来的负担：COVID-19 大流行期间患有先天性寨卡综合征的儿童日常生活照片。
Health Expect. 2023 Dec;26(6):2500-2513. doi: 10.1111/hex.13717. Epub 2023 Aug 18.
5
Disease burden of congenital Zika virus syndrome in Brazil and its association with socioeconomic data.巴西先天性寨卡病毒综合征的疾病负担及其与社会经济数据的关联。
Sci Rep. 2023 Jul 23;13(1):11882. doi: 10.1038/s41598-023-38553-4.
6
My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions.我的孩子在成长，现在呢？根据照顾者的认知，探索先天性寨卡综合征儿童的环境需求。
Health Expect. 2022 Dec;25(6):2828-2836. doi: 10.1111/hex.13587. Epub 2022 Oct 25.
7
Healthcare for children with congenital Zika syndrome: analysis of access to social rights.先天性寨卡综合征患儿的医疗保健：社会权利获取情况分析。
Cien Saude Colet. 2022 Sep;27(9):3679-3688. doi: 10.1590/1413-81232022279.02972022. Epub 2022 May 18.
8
Effect of neurodevelopmental treatment in children with congenital Zika syndrome: A pilot study.先天性寨卡综合征患儿的神经发育治疗效果：一项初步研究。
J Paediatr Child Health. 2022 Nov;58(11):2008-2015. doi: 10.1111/jpc.16139. Epub 2022 Jul 30.
9
The economic burden of congenital Zika Syndrome in Brazil: an overview at 5 years and 10 years.巴西先天性寨卡综合征的经济负担：5 年和 10 年的概述。
BMJ Glob Health. 2022 Jul;7(7). doi: 10.1136/bmjgh-2022-008784.
10
[Primary care in the context of the Zika epidemic and congenital Zika syndrome in the state of Pernambuco, Brazil: context, bond and care].[巴西伯南布哥州寨卡疫情及先天性寨卡综合征背景下的初级医疗保健：背景、联系与照护]
Cien Saude Colet. 2022 Mar;27(3):861-870. doi: 10.1590/1413-81232022273.44782020. Epub 2021 Jan 28.