Rios P Camila, Scharoun Benson Sara M
Department of Kinesiology, University of Windsor, Windsor, ON, Canada.
Front Psychol. 2020 Jun 19;11:1260. doi: 10.3389/fpsyg.2020.01260. eCollection 2020.
Participation is a key aspect of quality of life and is essential for children's well-being, yet children with disabilities are at risk for lower participation in social activities. For children with autism spectrum disorder (ASD), social skills may present a significant obstacle for participation in activities of daily life; however, motor skill development may also serve an important contributing factor. Nevertheless, the link between social and motor skills in children with ASD is not fully understood. The current research implemented semistructured interviews to garner descriptive insights from caregivers ( = 17) into the social and motor skills of 5- to 9-year-old children with ASD and the impact on participation in social activities. A constant comparative method was used to generate a coherent and thematic representation of caregivers' experiences. Thematic analysis revealed core consistencies in three areas: (1) caregivers viewed participation differently than their children; (2) participation levels of children with ASD are context specific; (3) challenges with social skills were perceived to present a greater obstacle to participation than motor skills. Overall, the notion that ASD is a heterogeneous disorder was made very apparent. Although caregivers believe there to be immense value in current treatment and intervention options, the availability and access to such options was a major barrier. The effectiveness of intervention programming designed to increase participation is contingent on understanding factors that affect participation. Implications concerning caregivers' perspectives are discussed.
参与是生活质量的关键方面,对儿童的幸福至关重要,但残疾儿童参与社会活动的风险较低。对于自闭症谱系障碍(ASD)儿童来说,社交技能可能是参与日常生活活动的重大障碍;然而,运动技能发展也可能是一个重要的促成因素。尽管如此,ASD儿童社交技能与运动技能之间的联系尚未完全明了。当前的研究采用半结构化访谈,从17名照顾者那里获取关于5至9岁ASD儿童社交和运动技能以及对参与社会活动影响的描述性见解。采用持续比较法来生成照顾者经历的连贯且具主题性的呈现。主题分析揭示了三个领域的核心一致性:(1)照顾者对参与的看法与他们的孩子不同;(2)ASD儿童的参与水平因具体情境而异;(3)社交技能方面的挑战被认为比运动技能对参与构成更大障碍。总体而言,ASD是一种异质性障碍这一观念非常明显。尽管照顾者认为当前的治疗和干预选择有巨大价值,但获得这些选择的可能性和途径是一个主要障碍。旨在提高参与度的干预计划的有效性取决于对影响参与的因素的理解。文中讨论了有关照顾者观点的影响。