Aoun Samar M, Abel Julian, Rumbold Bruce, Cross Kate, Moore Jo, Skeers Piari, Deliens Luc
Public Health Palliative Care Unit, School of Psychology and Public Health, La Trobe University, Melbourne, VIC 3086, Australia.
Director, Compassionate Communities, UK.
Palliat Care Soc Pract. 2020 Jul 2;14:2632352420935130. doi: 10.1177/2632352420935130. eCollection 2020.
There is an international drive towards increasing provision of community-led models of social and practical support for people living with advanced illness.
This feasibility project aims to develop, implement and evaluate a model of community volunteers, identified as Compassionate Communities Connectors, to support people living with advanced life limiting illnesses/palliative care needs. The aims also include the development and evaluation of a training programme for volunteers and assessment of the feasibility, acceptability and preliminary effectiveness of this model of care.
The approach seeks to map and mobilise people's personal networks of care through the Connectors enlisting Caring Helpers (community volunteers). Up to 10 Connectors will be trained to work with at least 30 families selected by the palliative care service as requiring support. The primary outcome is the effect of the intervention on social connectedness. Secondary outcomes are the intervention's effect on unplanned hospital utilisation, caregiver support needs, advance care plans and satisfaction with intervention for patients/carers, volunteers and service providers.
It is expected that this intervention will enhance patient, carer and family social, psychological and practical support and reduce the need for dying people to be admitted to a hospital.
国际上正在推动为晚期疾病患者增加由社区主导的社会和实际支持模式。
这个可行性项目旨在开发、实施和评估一种社区志愿者模式，即“富有同情心的社区联络者”，以支持患有晚期生命受限疾病/有姑息治疗需求的人。目标还包括为志愿者制定和评估培训计划，以及评估这种护理模式的可行性、可接受性和初步效果。
该方法旨在通过联络者招募关爱助手（社区志愿者）来梳理和动员人们的个人护理网络。将培训多达10名联络者，与姑息治疗服务机构选定的至少30个需要支持的家庭合作。主要结果是干预对社会联系的影响。次要结果是干预对非计划住院率、照顾者支持需求、预先护理计划以及患者/照顾者、志愿者和服务提供者对干预的满意度的影响。
预计这种干预将增强患者、照顾者和家庭的社会、心理和实际支持，并减少临终者住院的需求。
