Hospital Sultan Haji Ahmad Shah, Ministry of Health, Temerloh, Malaysia.
University of Birmingham, Cicely Saunders Institute, Kings College London, London United Kingdom.
J Pain Symptom Manage. 2020 Dec;60(6):1223-1238.e4. doi: 10.1016/j.jpainsymman.2020.06.032. Epub 2020 Jul 10.
Care for people with progressive illness should be person centered and account for their cultural values and spiritual beliefs. There are an estimated 1.7 billion Muslims worldwide, largely living in low-income and middle-income countries.
This study aimed to identify, appraise, and integrate the evidence for the experiences and preferences of Muslim patients and/or families for end-of-life care in Muslim-majority countries.
Systematic review.
PsychINFO, MEDLINE, Embase, Global Health, CINAHL, Cochrane Library and Registry of Clinical Trials, PubMed, Applied Social Sciences Index and Abstracts (ASSIA), Social Services Abstracts, Sociological Abstracts, Social Policy & Practice, and Scopus were searched until December 2018. Handsearching was performed, and gray literature was included. Qualitative studies analyzed using thematic analysis and quantitative component provided triangulation.
The initial search yielded n = 5098 articles, of which n = 30 met the inclusion criteria. A total of 5342 participants (4345 patients; 81.3%) were included; 97.6% had advanced cancer. Most (n = 22) studies were quantitative. Three themes and subthemes from qualitative studies were identified using thematic analysis: selflessness (burden to others and caregiver responsibilities), ambivalence (hope and hopelessness), and strong beliefs in Islam (beliefs in death and afterlife and closeness to Allah). Qualitative studies reported triangulation; demonstrating conflicts in diagnosis disclosure and total pain burden experienced by both patients and families.
Despite the scarce evidence of relatively low quality, the analysis revealed core themes. To achieve palliative care for all in line with the total pain model, beliefs must be identified and understood in relation to decision-making processes and practices.
对患有进行性疾病的患者的关怀应以人为本，考虑到他们的文化价值观和精神信仰。全世界估计有 17 亿穆斯林，他们主要生活在低收入和中等收入国家。
本研究旨在确定、评估和综合穆斯林占多数的国家中穆斯林患者和/或家属对临终关怀的体验和偏好的证据。
系统综述。
PsychINFO、MEDLINE、Embase、全球卫生、CINAHL、Cochrane 图书馆和临床试验注册中心、PubMed、应用社会科学索引和摘要（ASSIA）、社会服务摘要、社会学摘要、社会政策与实践以及 Scopus 进行了检索，检索时间截至 2018 年 12 月。进行了手工检索，并纳入了灰色文献。使用主题分析对定性研究进行分析，定量部分提供了三角剖分。
初步搜索产生了 n = 5098 篇文章，其中 n = 30 篇符合纳入标准。共有 5342 名参与者（4345 名患者；81.3%）被纳入；97.6%的患者患有晚期癌症。大多数（n = 22）研究为定量研究。通过主题分析确定了定性研究的三个主题和子主题：无私（对他人的负担和照顾者的责任）、矛盾心理（希望和绝望）以及对伊斯兰教的坚定信仰（对死亡和来世的信仰以及与真主的亲近）。定性研究报告了三角剖分；表明患者和家属在诊断披露和经历的总疼痛负担方面存在冲突。
尽管证据相对较少且质量较低，但分析结果揭示了核心主题。为了按照总疼痛模型实现所有人的姑息治疗，必须在决策过程和实践中确定和理解信仰。
