Yuksel Cigdem
Psychiatric Nursing Department, Gulhane Faculty of Nursing, University of Health Sciences, Turkiye, 06010, Etlik, Ankara, Turkey.
J Relig Health. 2025 Jan 27. doi: 10.1007/s10943-025-02253-2.
Familial Mediterranean Fever (FMF) is a genetic autoinflammatory disorder characterized by recurrent febrile episodes that are accompanied by pain in the abdomen, chest, or joints caused by peritonitis, pleuritis, skin lesions, arthritis, and pericarditis. This original article aims to provide an analytic autoethnographic account of a Turkish patient's experience of FMF, with a focus on the discovery of spiritual meaning. In addition to discussing the grief reactions to a loss of health, the article uses self-reflexive discourse and narrative-based analysis to explore four stages of discovery of spiritual meaning through FMF: "omnipotent me," "God's punishment," "God's test," and "God's mercy." The article provides an in-depth look at the experience of FMF, a chronic and lifelong disease, through a spiritual lens and offers suggestions for mental health professionals and rheumatologists providing holistic treatment to FMF patients that might improve treatment adherence.
家族性地中海热（FMF）是一种遗传性自身炎症性疾病，其特征为反复发热发作，并伴有由腹膜炎、胸膜炎、皮肤病变、关节炎和心包炎引起的腹部、胸部或关节疼痛。这篇原创文章旨在对一名土耳其患者的家族性地中海热经历进行分析性自我民族志描述，重点是发现其精神意义。除了讨论对健康丧失的悲伤反应外，本文还运用自我反思性话语和基于叙事的分析方法，探索通过家族性地中海热发现精神意义的四个阶段：“无所不能的我”“上帝的惩罚”“上帝的考验”和“上帝的怜悯”。本文通过精神视角深入审视了家族性地中海热这种慢性终身疾病的经历，并为为家族性地中海热患者提供整体治疗的心理健康专业人员和风湿病学家提供了建议，这些建议可能会提高治疗依从性。
