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探讨照顾者压力负荷与痴呆患者行为之间的关系:以台湾南部医学中心痴呆专科门诊数据为例的一项病例研究。

Exploring the Relationship between the Caregiver's Stress Load and Dementia Patient Behavior: A Case Study of Dementia Specialist Outpatient Data from the Southern Medical Center of Taiwan.

机构信息

Graduate School of Design, National Yunlin University of Science and Technology (YunTech), Yunlin 64002, Taiwan.

Doctoral Program, Graduate School of Engineering Science and Technology, YunTech, Yunlin 64002, Taiwan.

出版信息

Int J Environ Res Public Health. 2020 Jul 10;17(14):4989. doi: 10.3390/ijerph17144989.

Abstract

The aim of this study was to explore the relationship between caregivers' stress loads and dementia patient behavior, including the correlation of "patient behavior" (severity and frequency), "social care system", and "stress levels of caregivers". The research method was based on the analysis of survey data collected at a dementia specialist outpatient clinic of a medical center in southern Taiwan from November 2013 to May 2015. Those surveyed by the center included patients who visited the hospital, and their caregivers completed a questionnaire survey. During the study period, a total of 558 questionnaires for 279 pairs were distributed, and all questionnaires were recovered. According to the survey statistics, the average age of the caregivers interviewed was 53.1 years; women accounted for 61.3% of respondents, and the duration of care exceeded three years. In terms of education, most respondents were college/university graduates. The most common surveyed relationship was that of children acting as the caregiver to a parent, and the average age of the patients was 77.73 years. Most caregivers were found to live with the patients (75.3%). In terms of severity and frequency, the surveyed items with the highest average scores were both the "delusion" item of the "patient behavior" facet, the "mental support"(mean = 1.97; standard deviation, SD = 0.869) item of the "social care system" facet, and the "social life stress" (mean = 2.26, SD = 1.510) item of the "Stress levels of caregivers" facet. The research results show that the "patient behavior" and "Stress levels of caregivers" facets have a significant positive correlation, and the "social care system" and "Stress levels of caregivers" facets have a significant negative correlation. In the future, priority of service planning and implementation of long-term policy should be given to home care, since this is a cultural characteristic of Taiwan. In circumstances where a primary caregiver takes care of family members, the patient's behavior, length of care, mental support, and social life issues are key items that should be considered in the social welfare control service to alleviate the load of dementia patients on family caregivers.

摘要

本研究旨在探讨照顾者的压力负荷与失智症患者行为之间的关系,包括“患者行为”(严重程度和频率)、“社会照顾系统”和“照顾者压力水平”之间的相关性。研究方法基于对 2013 年 11 月至 2015 年 5 月期间在台湾南部一家医疗中心的失智症专科门诊收集的调查数据进行分析。该中心调查的对象包括就诊的患者及其照顾者,他们完成了一份问卷调查。在研究期间,共发放了 558 份针对 279 对的问卷,全部回收。根据调查统计,接受访谈的照顾者平均年龄为 53.1 岁;女性占受访者的 61.3%,照顾时间超过三年。在教育程度方面,大多数受访者是大学/大专毕业生。最常见的调查关系是子女照顾父母,患者的平均年龄为 77.73 岁。大多数照顾者与患者同住(75.3%)。在严重程度和频率方面,调查项目中平均得分最高的均为“患者行为”方面的“妄想”项目、“社会照顾系统”方面的“心理支持”(平均值=1.97;标准差,SD=0.869)项目以及“照顾者压力水平”方面的“社会生活压力”(平均值=2.26,SD=1.510)项目。研究结果表明,“患者行为”和“照顾者压力水平”方面呈显著正相关,而“社会照顾系统”和“照顾者压力水平”方面呈显著负相关。未来,应优先考虑家庭护理服务规划和长期政策的实施,因为这是台湾的文化特色。在主要照顾者照顾家庭成员的情况下,患者的行为、照顾时间、心理支持和社会生活问题是社会福利控制服务中应考虑的关键项目,以减轻痴呆症患者对家庭照顾者的负担。

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