Boato Elvio Marcos, Albuquerque Augusto Parras, Nascimento Edilson Francisco, Rodrigues Grassiele Massoli, Melo Geiziane Leite Rodrigues, Moita Márcia Correia
Catholic University of Brasília, Brazil.
State Department of Education of the Federal District, Brazil.
Heliyon. 2020 Jul 10;6(7):e04411. doi: 10.1016/j.heliyon.2020.e04411. eCollection 2020 Jul.
The purpose of this case report is to present the case study of a child with Systemic Infantile Hyalinosis in the educational attendance specialized in Physical Education and Art (dance). The collection took place through the Teachers' Field Diary and the interview with the child's mother. The pedagogical intervention lasted 15 months and took place at the swimming and dance workshops at the Catholic University of Brasilia, with two weekly classes in each workshop lasting 30 min each. The intervention was based on Henri Wallon's theory of emotions and sought freedom of expression, body experience, and the discovery of a body marked by disease and, in many moments, disrespected in its possibilities. At the end of the intervention, mobility, and range of motion gains were observed in motor terms, which were compromised due to the instability caused by the progressive disease. However, there were significant gains regarding self-esteem, which were relevant and significantly contributed to a better quality of life of the child.
本病例报告的目的是呈现一名患有全身性婴儿透明变性的儿童在体育与艺术(舞蹈)教育出勤方面的案例研究。资料收集通过教师现场日记以及与孩子母亲的访谈进行。教学干预持续了15个月,在巴西利亚天主教大学的游泳和舞蹈工作坊开展,每个工作坊每周有两节课,每节课持续30分钟。该干预基于亨利·瓦隆的情感理论,旨在实现表达自由、身体体验,以及发现一个被疾病所标记且在许多时候其可能性被忽视的身体。干预结束时,在运动方面观察到了活动能力和关节活动范围的改善,这些因进行性疾病导致的不稳定而受到损害。然而,在自尊方面有显著提升,这很重要,并对孩子更好的生活质量有显著贡献。