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先天性畸形监测的国际合作网络:叙事性综述。

International collaboration networks for the surveillance of congenital anomalies: a narrative review.

机构信息

Secretaria de Vigilância em Saúde, Ministério da Saúde, Brasília, DF, Brasil.

出版信息

Epidemiol Serv Saude. 2020;29(4):e2020093. doi: 10.5123/s1679-49742020000400003. Epub 2020 Jul 29.

DOI:10.5123/s1679-49742020000400003
PMID:32756830
Abstract

Objective to identify international congenital anomaly surveillance collaboration networks, to list the programs that compose them and to compare their main characteristics. Methods this was a narrative literature review by means of a MEDLINE database search (via PubMed) and searches involving websites, reports and official documents. Results six international congenital anomaly surveillance collaboration networks were identified (ECLAMC, ICBDSR, EUROCAT, BINOCAR, SEAR-NBBD and ReLAMC), comprised of 98 programs present in 58 different countries on all continents, except Africa; the main characteristics regarding type of surveillance, coverage and location were discussed in a comparative manner. Conclusion international collaborative networks are important players for congenital anomaly surveillance, contributing to the understanding of the global epidemiological scenario of these conditions, in addition to acting both to strengthen individual existing programs and also to create surveillance initiatives in unassisted regions.

摘要

目的 识别国际先天性畸形监测合作网络,列出构成这些网络的项目,并比较它们的主要特征。

方法 这是一项叙述性文献综述,通过 MEDLINE 数据库检索(通过 PubMed)和涉及网站、报告和官方文件的检索。

结果 确定了六个国际先天性畸形监测合作网络(ECLAMC、ICBDSR、EUROCAT、BINOCAR、SEAR-NBBD 和 ReLAMC),它们由 98 个项目组成,分布在除非洲以外的所有大陆的 58 个不同国家;以比较的方式讨论了关于监测类型、覆盖范围和地点的主要特征。

结论 国际合作网络是先天性畸形监测的重要参与者,有助于了解这些疾病在全球的流行病学情况,不仅加强了现有项目,而且还在没有援助的地区开展了监测举措。

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