Faculty of Health, Valencian International University, 46002 Valencia, Spain.
Faculty of Nursing and Chiropody, University of Valencia, 46010 Valencia, Spain.
Int J Environ Res Public Health. 2021 Jul 8;18(14):7294. doi: 10.3390/ijerph18147294.
(1) Background: When living with one or more long term conditions (LTCs), both the patient and the family experience the impact of the condition at different levels. The family's needs and perceptions should be considered in the process of caring for people with LTCs. The aim of this review is to understand "the process of living with LTCs" from a family perspective. (2) Methods: A scoping review and narrative synthesis were conducted using a systematic methodology in MEDLINE, CINAHL, Web of Science and PsycINFO, in English and Spanish, including evidence from 2018. (3) Results: A total of 28 articles were included in the review. Acceptance, coping, self-management, integration, and adjustment were key attributes in the process of living with LTCs from the perspective of family caregivers that interrelated in a dynamic way through different mechanisms: being aware of the changing situation, personal networks, information and education, personal conditions, attitude to life and communication. (4) Conclusions: The five attributes that comprise living with LTCs from the perspective of the family caregiver are closely connected of to those of patients living with LTCs; however, self-management and integration have a different meaning and application.
(1) 背景：当一个人或多人患有长期疾病（LTC）时，患者和家庭都会在不同层面上受到疾病的影响。在照顾患有 LTC 的人时，应考虑家庭的需求和看法。本综述旨在从家庭角度理解“患有 LTC 的生活过程”。(2) 方法：使用系统方法在 MEDLINE、CINAHL、Web of Science 和 PsycINFO 中进行了范围综述和叙述性综合，包括来自 2018 年的证据，语言为英文和西班牙语。(3) 结果：共纳入了 28 篇文章。接受、应对、自我管理、整合和调整是家庭照顾者从 LTC 患者角度看待生活过程的关键属性，它们通过不同的机制以动态的方式相互关联：了解不断变化的情况、个人网络、信息和教育、个人状况、生活态度和沟通。(4) 结论：从家庭照顾者的角度来看，构成与 LTC 患者生活相关的五个属性紧密相连；然而，自我管理和整合具有不同的含义和应用。
