父母对长期患病儿童幸福意义的看法：一项混合概念分析。
Perspectives of parents on the meaning of happiness in children with long-term illness: A hybrid concept analysis.
作者信息
Nukpezah Ruth Nimota, Cheraghi Mohammad Ali, Pashaeypoor Shahzad, Sadat Hoseini Akram Sadat
机构信息
Department of Pediatric Nursing, School of Nursing & Midwifery International Campus - Tehran University of Medical Sciences, Iran Tehran Iran.
Research Center for Quran, Hadith, and Medicine, Spiritual Health Group Tehran University of Medical Sciences Tehran Iran.
出版信息
Nurs Open. 2020 Jun 17;7(5):1506-1516. doi: 10.1002/nop2.532. eCollection 2020 Sep.
AIM
To define the concept of happiness among children with chronic disease.
BACKGROUND
Happiness is an old human quest, the existing literature on the definition of happiness among children with chronic diseases is sparse.
METHODS
The three-phase hybrid model was used. In the first (theoretical) phase, a literature review was conducted. In the second (fieldwork) phase, the semi-structured interview data were analysed through content analysis. Ten participants were purposively sampled. In the third (final analytic) phase, the practical definition of the concept was identified.
RESULTS
The practical definition of happiness in a Ghanaian chronically ill child is the "subjective and positive lifelong process of adapting to biological, physiological, psychosocial, economic and environmental changes caused by the disease trajectory, which affects the well-being of the child and the family."
CONCLUSIONS
This study offers a background for selecting appropriate health indicators and outcome measures in promoting happiness in children with chronic diseases.
目的
界定慢性病患儿幸福的概念。
背景
幸福是人类由来已久的追求，关于慢性病患儿幸福定义的现有文献较为匮乏。
方法
采用三阶段混合模型。在第一（理论）阶段，进行文献综述。在第二（实地调查）阶段，通过内容分析法对半结构化访谈数据进行分析。有目的地抽取了10名参与者。在第三（最终分析）阶段，确定该概念的实际定义。
结果
加纳慢性病患儿幸福的实际定义为“适应由疾病轨迹引起的生物、生理、心理社会、经济和环境变化的主观且积极的终身过程，这会影响患儿及其家庭的幸福”。
结论
本研究为在促进慢性病患儿幸福方面选择合适的健康指标和结果测量方法提供了背景。
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