McConkey Roy
Institute of Nursing and Health Research, University of Ulster, Newtownabbey BT37 0QB, N. Ireland, UK.
Children (Basel). 2020 Sep 1;7(9):120. doi: 10.3390/children7090120.
Increasing emphasis is placed on the provision of family-centred interventions when children have developmental disabilities with the aim of supporting parents as well as fostering the child's development. Although various instruments have been developed to assess parental health, stress and quality of life, these are rarely used by practitioners because of the burden they place on informants. A brief measure, rooted in the concept of subjective wellbeing, was developed and tested with over 400 parents of children with ASD participating in a home-based intervention. Consisting of eight items and using a 10-point rating scale, the measure was readily understood and accepted by parents. The items contributed to one main factor that confirmed the measure's construct validity. The internal reliability of the scale was reasonable, and there was promising evidence of test-retest reliability. There is evidence too for criterion validity through a significant relationship with a measure of parental mental health. The summary score derived from the measure was sensitive to the predicted differences on wellbeing scores by parent characteristics as well as to features of their engagement with the intervention. This brief assessment tool could help practitioners to evidence the impact of their family-centred interventions.
当儿童患有发育障碍时，越来越强调提供以家庭为中心的干预措施，目的是支持父母并促进儿童的发展。尽管已经开发了各种工具来评估父母的健康状况、压力和生活质量，但由于这些工具给受访者带来负担，从业者很少使用。基于主观幸福感概念开发了一种简短的测量方法，并对400多名参与家庭干预的自闭症儿童家长进行了测试。该测量方法由八个项目组成，采用10分制评分量表，家长很容易理解和接受。这些项目促成了一个主要因素，证实了该测量方法的结构效度。该量表的内部信度合理，重测信度也有令人满意的证据。通过与父母心理健康测量方法的显著关系，也有证据证明其效标效度。从该测量方法得出的总分对父母特征对幸福感得分的预测差异以及他们参与干预的特征很敏感。这种简短的评估工具可以帮助从业者证明他们以家庭为中心的干预措施的效果。
