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中隔心肌起搏提高杜氏肌营养不良患者夜间使用无创通气的依从性。

MPV promote adherence to nocturnal NIV in a Duchenne patient.

机构信息

UOC Pathophysiology and Respiratory Rehabilitation, Intensive Care, Department, Azienda Ospedaliera dei Colli, Naples, Italy.

出版信息

Acta Myol. 2020 Jun 1;39(2):101-104. doi: 10.36185/2532-1900-014. eCollection 2020 Jun.

DOI:10.36185/2532-1900-014
PMID:32904909
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7460732/
Abstract

We described a case of a patient 20 years old, affected by Duchenne dystrophy with obstructive sleep apnoea syndrome and severe nocturnal desaturation. He was not compliant to non-invasive ventilation (NIV) for claustrophobia and panic attacks. Mouthpiece ventilation was successfully used in this patient, who later accepted the nighttime NIV.

摘要

我们描述了一例 20 岁的患者,患有杜氏肌营养不良症伴阻塞性睡眠呼吸暂停综合征和严重夜间低氧血症。由于幽闭恐惧症和惊恐发作,他无法耐受无创通气(NIV)。该患者成功使用了口器通气,后来接受了夜间 NIV。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4b7/7460732/6326d4d90324/am-2020-02-101-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4b7/7460732/4ed4a0513a57/am-2020-02-101-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4b7/7460732/1bade269e729/am-2020-02-101-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4b7/7460732/6326d4d90324/am-2020-02-101-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4b7/7460732/4ed4a0513a57/am-2020-02-101-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4b7/7460732/1bade269e729/am-2020-02-101-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b4b7/7460732/6326d4d90324/am-2020-02-101-g003.jpg

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MPV promote adherence to nocturnal NIV in a Duchenne patient.中隔心肌起搏提高杜氏肌营养不良患者夜间使用无创通气的依从性。
Acta Myol. 2020 Jun 1;39(2):101-104. doi: 10.36185/2532-1900-014. eCollection 2020 Jun.
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引用本文的文献

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Case Report: Home initiation of nocturnal non-invasive ventilation in two adolescents with Duchenne muscular dystrophy and comorbid autism spectrum disorder and ADHD.病例报告:两名患有杜氏肌营养不良症并伴有共病自闭症谱系障碍和注意力缺陷多动障碍的青少年在家中开始夜间无创通气治疗。
Front Pediatr. 2025 Mar 14;13:1525365. doi: 10.3389/fped.2025.1525365. eCollection 2025.
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Psychological Factors Influencing Adherence to NIV in Neuromuscular Patients Dependent on Non Invasive Mechanical Ventilation: Preliminary Results.影响依赖无创机械通气的神经肌肉疾病患者坚持使用无创通气的心理因素:初步结果
J Clin Med. 2023 Sep 9;12(18):5866. doi: 10.3390/jcm12185866.
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本文引用的文献

1
Respiratory Involvement in Patients with Neuromuscular Diseases: A Narrative Review.神经肌肉疾病患者的呼吸受累:一篇叙述性综述。
Pulm Med. 2019 Dec 26;2019:2734054. doi: 10.1155/2019/2734054. eCollection 2019.
2
Daytime noninvasive ventilatory support for patients with ventilatory pump failure: a narrative review.通气泵衰竭患者的日间无创通气支持:一项叙述性综述
Multidiscip Respir Med. 2019 Nov 30;14:38. doi: 10.1186/s40248-019-0202-7. eCollection 2019.
3
Home ventilator performances with mouthpiece ventilation: Does resistance change effectiveness?
Characterization of sleep-disordered breathing in children with Duchenne muscular dystrophy by the American Academy of Sleep Medicine criteria vs disease-specific criteria: what are the differences?
使用美国睡眠医学学会标准与疾病特异性标准对杜氏肌营养不良症患儿睡眠呼吸障碍进行特征描述:有何不同?
J Clin Sleep Med. 2022 Feb 1;18(2):609-616. doi: 10.5664/jcsm.9678.
使用口含器通气时家用呼吸机的性能:阻力会改变有效性吗?
Clin Respir J. 2018 Apr;12(4):1765-1766. doi: 10.1111/crj.12676. Epub 2017 Aug 6.
4
Mouthpiece ventilation: just a home-care support?口含管通气:只是一种家庭护理支持手段?
Respir Care. 2014 Dec;59(12):1951-3. doi: 10.4187/respcare.03789.
5
Open circuit mouthpiece ventilation: Concise clinical review.开放式口含管通气:简明临床综述。
Rev Port Pneumol. 2014 Jul-Aug;20(4):211-8. doi: 10.1016/j.rppneu.2014.03.004. Epub 2014 May 17.
6
Medical and psychosocial considerations in rehabilitation care of childhood neuromuscular diseases.儿童神经肌肉疾病康复护理中的医学和社会心理因素
Handb Clin Neurol. 2013;113:1491-5. doi: 10.1016/B978-0-444-59565-2.00019-8.
7
Intermittent positive pressure ventilation via the mouth as an alternative to tracheostomy for 257 ventilator users.对于257名使用呼吸机的患者,经口间歇性正压通气可作为气管切开术的替代方法。
Chest. 1993 Jan;103(1):174-82. doi: 10.1378/chest.103.1.174.