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美国疾病控制与预防中心 2019 年新型冠状病毒病(COVID-19)信息管理:满足国家卫生保健和公共卫生需求,制定标准化数据定义和数据交换编码词汇表。

Centers for Disease Control and Prevention 2019 novel coronavirus disease (COVID-19) information management: addressing national health-care and public health needs for standardized data definitions and codified vocabulary for data exchange.

机构信息

Centers for Disease Control and Prevention, Atlanta, Georgia, USA.

出版信息

J Am Med Inform Assoc. 2020 Jul 1;27(9):1476-1487. doi: 10.1093/jamia/ocaa141.

Abstract

OBJECTIVE

The 2019 novel coronavirus disease (COVID-19) outbreak progressed rapidly from a public health (PH) emergency of international concern (World Health Organization [WHO], 30 January 2020) to a pandemic (WHO, 11 March 2020). The declaration of a national emergency in the United States (13 March 2020) necessitated the addition and modification of terminology related to COVID-19 and development of the disease's case definition. During this period, the Centers for Disease Control and Prevention (CDC) and standard development organizations released guidance on data standards for reporting COVID-19 clinical encounters, laboratory results, cause-of-death certifications, and other surveillance processes for COVID-19 PH emergency operations. The CDC COVID-19 Information Management Repository was created to address the need for PH and health-care stakeholders at local and national levels to easily obtain access to comprehensive and up-to-date information management resources.

MATERIALS AND METHODS

We introduce the clinical and health-care informatics community to the CDC COVID-19 Information Management Repository: a new, national COVID-19 information management tool. We provide a description of COVID-19 informatics resources, including data requirements for COVID-19 data reporting.

RESULTS

We demonstrate the CDC COVID-19 Information Management Repository's categorization and management of critical COVID-19 informatics documentation and standards. We also describe COVID-19 data exchange standards, forms, and specifications.

CONCLUSIONS

This information will be valuable to clinical and PH informaticians, epidemiologists, data analysts, standards developers and implementers, and information technology managers involved in the development of COVID-19 situational awareness and response reporting and analytics.

摘要

目的

2019 年新型冠状病毒病(COVID-19)疫情迅速从国际关注的突发公共卫生事件(世界卫生组织[WHO],2020 年 1 月 30 日)演变为大流行(WHO,2020 年 3 月 11 日)。美国宣布国家进入紧急状态(2020 年 3 月 13 日),需要增加和修改与 COVID-19 相关的术语,并制定该疾病的病例定义。在此期间,美国疾病控制与预防中心(CDC)和标准制定组织发布了关于报告 COVID-19 临床接触、实验室结果、死因证明和其他 COVID-19 公共卫生应急操作监测流程的数据标准指南。美国 CDC COVID-19 信息管理库的建立是为了满足地方和国家各级公共卫生和医疗保健利益相关者对方便获取全面、最新信息管理资源的需求。

材料和方法

我们向临床和医疗保健信息学社区介绍美国 CDC COVID-19 信息管理库:这是一个新的、全国性的 COVID-19 信息管理工具。我们提供了 COVID-19 信息学资源的描述,包括 COVID-19 数据报告的数据要求。

结果

我们展示了美国 CDC COVID-19 信息管理库对关键 COVID-19 信息学文档和标准的分类和管理。我们还描述了 COVID-19 数据交换标准、表格和规范。

结论

这些信息对参与开发 COVID-19 态势感知和应对报告和分析的临床和公共卫生信息学家、流行病学家、数据分析师、标准制定者和实施者以及信息技术经理将非常有价值。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/01ff/7647343/65550019b4f4/ocaa141f1.jpg

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