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“多年来我们一直备受关注——现在轮到你们接受审视了!”:学习障碍共同研究者开展在线调查,以挑战公众对学习障碍的认知。

"We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities.

作者信息

Chapko Dorota, Frumiento Pino, Edwards Nalini, Emeh Lizzie, Kennedy Donald, McNicholas David, Overton Michaela, Snead Mark, Steward Robyn, Sutton Jenny M, Jeffreys Evie, Long Catherine, Croll-Knight Jess, Connors Ben, Castell-Ward Sam, Coke David, McPeake Bethany, Renel William, McGinley Chris, Remington Anna, Whittuck Dora, Kieffer John, Ewans Sarah, Williams Mark, Grierson Mick

机构信息

Creative Computing Institute, University of the Arts London, London, UK.

Heart n Soul at The Hub, Heart n Soul, London, UK.

出版信息

Proc SIGCHI Conf Hum Factor Comput Syst. 2020 Apr 21;20. doi: 10.1145/3313831.3376278. eCollection 2020 Apr.

Abstract

Public attitudes towards learning disabilities (LDs) are generally reported as positive, inclusive and empathetic. However, these findings do not reflect the lived experiences of people with LDs. To shed light on this disparity, a team of co-researchers with LDs created the first online survey to challenge public understanding of LDs, asking questions in ways that are important to them and represent how they see themselves. Here, we describe and evaluate the process of creating an accessible survey platform and an online survey in a research team consisting of academic and non-academic professionals with and without LDs or autism. Through this inclusive research process, the co-designed survey met the expectations of the co-researchers and was well-received by the initial survey respondents. We reflect on the co-researchers' perspectives following the study completion, and consider the difficulties and advantages we encountered deploying such approaches and their potential implications on future survey data analysis.

摘要

一般报道称,公众对学习障碍(LDs)的态度是积极、包容且富有同理心的。然而,这些调查结果并未反映出学习障碍者的实际生活经历。为了揭示这种差异,一群患有学习障碍的共同研究者创建了首个在线调查,以挑战公众对学习障碍的理解,以对他们来说重要的方式提问,并展现他们对自身的看法。在此,我们描述并评估了在一个由患有或未患有学习障碍或自闭症的学术和非学术专业人员组成的研究团队中,创建一个无障碍调查平台和一项在线调查的过程。通过这一包容性的研究过程,共同设计的调查达到了共同研究者的期望,并受到了最初调查受访者的好评。我们在研究完成后反思了共同研究者的观点,并考虑了采用此类方法所遇到的困难和优势,以及它们对未来调查数据分析的潜在影响。

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