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寻找继续前行的方法:慢性病中的脆弱故事。

Finding ways to carry on: stories of vulnerability in chronic illness.

机构信息

Centre of Diaconia and Professional Practice, VID Specialized University , Oslo, Norway.

Faculty of Health Sciences and Social Care, Molde University College , Molde, Norway.

出版信息

Int J Qual Stud Health Well-being. 2020 Dec;15(1):1819635. doi: 10.1080/17482631.2020.1819635.

Abstract

In this study, we explore the lived experiences of chronic illness in four groups of patients; children with asthma, adolescents with diabetes, young adults with depression, and adult patients with chronic, obstructive pulmonary disease (COPD). Persons living with chronic illness are often designated as vulnerable. This study builds on the assumption that being vulnerable belongs to being human, and that vulnerability also might entail strength and possibilities for growth. A narrative analysis was undertaken to illuminate how experiences of vulnerability were narrated across the four patient groups, presenting four individual stories, one from each of the patient groups. The stories illuminate how living with a chronic illness implies differing capabilities and capacities dependent on the specific condition. At the same time the stories point to how various abilities and challenges in living with chronic illness can be alleviated or seen as resources. Considered together, the stories underscore how ´finding ways to carry on´ in chronic illness requires interpretational work. By calling upon resources among significant others, in the surroundings and in oneself, the narrator can find ways of interpreting living with chronic illness that might open towards a hopeful future.

摘要

在这项研究中,我们探讨了四组慢性疾病患者的患病体验:哮喘儿童、糖尿病青少年、抑郁症青年和慢性阻塞性肺疾病(COPD)成年患者。患有慢性疾病的人通常被认为是脆弱的。本研究基于这样一种假设,即脆弱属于人类的一部分,而脆弱也可能意味着力量和成长的可能性。我们进行了叙述分析,以阐明脆弱感如何在四个患者群体中被叙述,呈现了四个个体故事,每个患者群体一个。这些故事阐明了患有慢性疾病意味着依赖于特定条件的不同能力和能力。同时,这些故事也指出了在患有慢性疾病的生活中,各种能力和挑战如何可以得到缓解或被视为资源。综合来看,这些故事强调了在慢性疾病中“找到继续前进的方法”需要解释性工作。通过在周围环境和自己中调用重要他人的资源,叙述者可以找到解释慢性疾病的方法,这些方法可能会朝着充满希望的未来发展。

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Finding ways to carry on: stories of vulnerability in chronic illness.寻找继续前行的方法:慢性病中的脆弱故事。
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Vulnerability as a strength: why, when, and how?将脆弱性视为一种优势:为何、何时以及如何?
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