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Giving a Voice to Marginalised Groups for Health Care Decision Making.

作者信息

De Abreu Lourenço Richard, Devlin Nancy, Howard Kirsten, Ong Jason J, Ratcliffe Julie, Watson Jo, Willing Esther, Huynh Elisabeth

机构信息

Centre for Health Economics Research and Evaluation, University of Technology Sydney, Sydney, NSW, Australia.

Health Economics Unit, Melbourne School of Population and Global Health, University of Melbourne, Melbourne, VIC, Australia.

出版信息

Patient. 2021 Jan;14(1):5-10. doi: 10.1007/s40271-020-00456-1. Epub 2020 Oct 1.

DOI:10.1007/s40271-020-00456-1
PMID:33000424
Abstract
摘要

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Hiring, training, and supporting Peer Research Associates: Operationalizing community-based research principles within epidemiological studies by, with, and for women living with HIV.招聘、培训和支持同伴研究助理:通过女性参与的、为了女性的、由女性主导的社区为基础的研究原则,在艾滋病毒感染者流行病学研究中付诸实践。
Harm Reduct J. 2019 Jul 18;16(1):47. doi: 10.1186/s12954-019-0309-3.
2
Patient and general public preferences for health states: A call to reconsider current guidelines.患者及公众对健康状态的偏好:呼吁重新审视现行指南。
Soc Sci Med. 2016 Sep;165:66-74. doi: 10.1016/j.socscimed.2016.07.043. Epub 2016 Jul 31.
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Valuing the Child Health Utility 9D: Using profile case best worst scaling methods to develop a new adolescent specific scoring algorithm.
HIV暴露前预防的偏好:离散选择实验的系统评价
EClinicalMedicine. 2022 Jul 9;51:101507. doi: 10.1016/j.eclinm.2022.101507. eCollection 2022 Sep.
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Life-Course Marginalities of Positive Health and Aging: A Participatory Approach Integrating the Lived Experiences of Older Irish Travelers and Older Homeless Adults in Multistakeholder Research Processes.积极健康和老龄化的生命历程边缘化:一种参与式方法,将老年爱尔兰旅行者和多利益攸关方研究过程中的无家可归成年老年人的生活经历整合在一起。
Qual Health Res. 2022 Jun;32(7):1139-1152. doi: 10.1177/10497323221100346. Epub 2022 May 16.
儿童健康效用9D的评估:运用轮廓案例最佳-最差标度法开发一种新的针对青少年的评分算法。
Soc Sci Med. 2016 May;157:48-59. doi: 10.1016/j.socscimed.2016.03.042. Epub 2016 Mar 31.
4
Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare.包容性公众参与健康:促进边缘化群体参与医疗保健的政策、实践及理论贡献。
Soc Sci Med. 2015 Jun;135:31-9. doi: 10.1016/j.socscimed.2015.04.019. Epub 2015 Apr 23.
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Community participation in formulating the post-2015 health and development goal agenda: reflections of a multi-country research collaboration.社区参与制定2015年后健康与发展目标议程:多国研究合作的思考
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