关注倒数第二步：在囊性纤维化诊所增加早期肺移植讨论，为患者转诊做准备。 - Suppr

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超能文献

Focusing on the penultimate step: increasing early lung transplant discussion in cystic fibrosis clinic to prepare patients for referral.

作者信息

Bartley Bethany L, St John Anita, Neuringer Isabel P, Cummings Brian M, Yonker Lael M

机构信息

Pediatric Pulmonology, Massachusetts General Hospital, Boston, Massachusetts, USA.

Pulmonology, Massachusetts General Hospital, Boston, Massachusetts, USA.

出版信息

BMJ Open Qual. 2020 Oct;9(4). doi: 10.1136/bmjoq-2020-001031.

DOI:10.1136/bmjoq-2020-001031

PMID:33028657

原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7542621/

Abstract

摘要

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BMJ Open Qual. 2020 Oct;9(4). doi: 10.1136/bmjoq-2020-001031.

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本文引用的文献

Lung transplant referral practice patterns: a survey of cystic fibrosis physicians and general pulmonologists.肺移植转诊实践模式：囊性纤维化医师和普通肺科医师的调查。

BMC Pulm Med. 2020 Mar 4;20(1):58. doi: 10.1186/s12890-020-1067-4.

Elexacaftor-Tezacaftor-Ivacaftor for Cystic Fibrosis with a Single Phe508del Allele.依伐卡托与泰比卡托和艾克卡托三联复方药物治疗携带单个 F508del 突变的囊性纤维化

N Engl J Med. 2019 Nov 7;381(19):1809-1819. doi: 10.1056/NEJMoa1908639. Epub 2019 Oct 31.

Disease progression in patients with cystic fibrosis treated with ivacaftor: Data from national US and UK registries.依伐卡托治疗囊性纤维化患者的疾病进展：来自美国和英国国家注册中心的数据。

J Cyst Fibros. 2020 Jan;19(1):68-79. doi: 10.1016/j.jcf.2019.05.015. Epub 2019 Jun 10.

J Cyst Fibros. 2019 May;18(3):416-419. doi: 10.1016/j.jcf.2019.04.007. Epub 2019 Apr 17.

Lung transplant referral for individuals with cystic fibrosis: Cystic Fibrosis Foundation consensus guidelines.肺移植转诊推荐：囊性纤维化基金会共识指南。

J Cyst Fibros. 2019 May;18(3):321-333. doi: 10.1016/j.jcf.2019.03.002. Epub 2019 Mar 27.

Tezacaftor-Ivacaftor in Patients with Cystic Fibrosis Homozygous for Phe508del.Tezacaftor-Ivacaftor 治疗纯合子 Phe508del 突变型囊性纤维化患者的疗效

N Engl J Med. 2017 Nov 23;377(21):2013-2023. doi: 10.1056/NEJMoa1709846. Epub 2017 Nov 3.

Heterogeneity in Survival in Adult Patients With Cystic Fibrosis With FEV < 30% of Predicted in the United States.美国预测FEV<30%的成年囊性纤维化患者生存的异质性

Chest. 2017 Jun;151(6):1320-1328. doi: 10.1016/j.chest.2017.01.019. Epub 2017 Jan 20.

Cystic fibrosis physicians' perspectives on the timing of referral for lung transplant evaluation: a survey of physicians in the United States.囊性纤维化医生对肺移植评估转诊时机的看法：美国医生的一项调查

BMC Pulm Med. 2017 Jan 19;17(1):21. doi: 10.1186/s12890-017-0367-9.

Long-term safety and efficacy of ivacaftor in patients with cystic fibrosis who have the Gly551Asp-CFTR mutation: a phase 3, open-label extension study (PERSIST).依伐卡托在 Gly551Asp-CFTR 突变的囊性纤维化患者中的长期安全性和疗效：一项 3 期、开放标签扩展研究（PERSIST）。

Lancet Respir Med. 2014 Nov;2(11):902-910. doi: 10.1016/S2213-2600(14)70218-8. Epub 2014 Oct 9.

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