Ilhan Emre, Pacey Verity, Brown Laura, Spence Kaye, Gray Kelly, Rowland Jennifer E, White Karolyn, Hush Julia M
Faculty of Medicine, Health and Human Sciences, Department of Health Professions, Macquarie University, Sydney, NSW, Australia.
Faculty of Medicine, Health and Human Sciences, Department of Health Professions, Macquarie University, Ground Floor, 75 Talavera Road, Sydney, NSW, 2109, Australia.
Med Health Care Philos. 2021 Mar;24(1):65-72. doi: 10.1007/s11019-020-09982-z. Epub 2020 Oct 9.
One barrier to optimal pain management in the neonatal intensive care unit (NICU) is how the healthcare community perceives, and therefore manages, neonatal pain. In this paper, we emphasise that healthcare professionals not only have a professional obligation to care for neonates in the NICU, but that these patients are intrinsically worthy of care. We discuss the conditions that make neonates worthy recipients of pain management by highlighting how neonates are (1) vulnerable to pain and harm, and (2) completely dependent on others for pain management. We argue for a relational account of ethical decision-making in the NICU by demonstrating how an increase in vulnerability and dependence may be experienced by the healthcare community and the neonate's family. Finally, an ethical framework for decisions around neonatal pain management is proposed, focussing on surrogate decision-making and the importance of compassionate action through both a reflective and an affective empathy. As empathy can be highly motivating against pain, we propose that, in addition to educational programs that raise awareness and knowledge of neonatal pain and pain management, healthcare professionals must cultivate empathy in a collective manner, where all members of the NICU team, including parents, are compassionate decision-makers.
新生儿重症监护病房(NICU)中实现最佳疼痛管理的一个障碍是医疗界对新生儿疼痛的认知以及相应的处理方式。在本文中,我们强调医疗专业人员不仅有专业责任照顾NICU中的新生儿,而且这些患者本身就值得关爱。我们通过强调新生儿如何(1)易受疼痛和伤害,以及(2)在疼痛管理方面完全依赖他人,来讨论使新生儿成为疼痛管理合适对象的条件。我们通过展示医疗界和新生儿家庭可能如何体验到脆弱性和依赖性的增加,来论证NICU中伦理决策的关系性观点。最后,提出了一个围绕新生儿疼痛管理决策的伦理框架,重点关注替代决策以及通过反思性和情感性同理心采取同情行动的重要性。由于同理心对对抗疼痛具有高度的激励作用,我们建议,除了开展提高对新生儿疼痛和疼痛管理的认识与知识的教育项目外,医疗专业人员还必须以集体方式培养同理心,使NICU团队的所有成员,包括家长,都成为富有同情心的决策者。