Department of Psychiatry, Massachusetts General Hospital and Harvard Medical School, Charlestown, MA, USA.
Department of Social and Behavioral Sciences, School of Global Public Health, New York University, New York, NY, USA.
J Alzheimers Dis. 2020;78(2):515-528. doi: 10.3233/JAD-200932.
As the most common form of senile dementia, Alzheimer's disease (AD) is accompanied by a great deal of uncertainty which can lead to fear and stigma for those identified with this devastating disease. As the AD definition evolves from a syndromal to a biological construct, and early diagnoses becomes more commonplace, more confusion and stigma may result. We conducted a narrative review of the literature on AD stigma to consolidate information on this body of research. From the perspective of several stigma theories, we identified relevant studies to inform our understanding of the way in which implementation of the new framework for a biological based AD diagnosis may have resulted in new and emerging stigma. Herein, we discuss the emergence of new AD stigma as our understanding of the definition of the disease changes. We further propose recommendations for future research to reduce the stigma associated with AD.
作为最常见的老年痴呆症形式，阿尔茨海默病（AD）伴随着大量的不确定性，这可能导致被诊断为这种破坏性疾病的人感到恐惧和耻辱。随着 AD 的定义从综合征演变为生物学结构，并且早期诊断变得更加普遍，可能会导致更多的困惑和耻辱。我们对 AD 耻辱的文献进行了叙述性综述，以整合关于这一研究领域的信息。从几种耻辱理论的角度出发，我们确定了相关的研究，以了解实施新的基于生物学的 AD 诊断框架如何可能导致新的和新兴的耻辱。在此，我们讨论了随着疾病定义的变化，新的 AD 耻辱的出现。我们进一步提出了未来减少与 AD 相关耻辱的研究建议。
