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儿童癌症生活质量核心量表 PedsQL 3.0 中文版在瑞典儿童样本中的信度。

The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children.

机构信息

Department of Psychiatry and Neurochemistry, Institute of Neuroscience and Physiology, Sahlgrenska Academy, Gothenburg University, Sahlgrenska University Hospital, Gothenburg, Sweden.

The Queen Silvia Children's Hospital Sahlgrenska University Hospital , Gothenburg, Sweden.

出版信息

BMC Pediatr. 2020 Oct 28;20(1):497. doi: 10.1186/s12887-020-02387-0.

Abstract

BACKGROUND

The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument, designed to integrate generic and disease specific measures, and includes both self- and proxy-reports. The aim of the study was to assess the reliability and limited validity of the Swedish version of the disease specific Pediatric Quality of Life Inventory 3.0 Cancer Module Scales (PedsQL 3.0), in a sample of Swedish children diagnosed with cancer.

METHOD

A total of 94 families at The Queen Silvia Children's Hospital, Sahlgrenska University participated in the study. The Pediatric Quality of Life Inventory 4.0 Generic Core Scales (PedsQL 4.0) and the PedsQL 3.0 were administered to 63 children (aged 5-18 years) with cancer and to 94 parents of children with cancer aged 2-18 years.

RESULTS

The internal consistency of the PedsQL 3.0, reached or exceeded Cronbach's alpha values of 0.70 for both -self- and proxy-reports. The PedsQL 4.0 and PedsQL 3.0 were highly correlated (r = 0.94 for proxy-reports and r = 0.91 for self-reports), indicating convergent validity.

CONCLUSION

PedsQL 3.0 Cancer Module Scales can be used as a valuable tool for measuring cancer-specific HRQOL in child populations, both in research and in clinical practice.

摘要

背景

儿科生活质量量表(PedsQL)是一种模块化工具,旨在整合通用和疾病特异性指标,包括自我报告和代理报告。本研究的目的是评估瑞典语版疾病特异性儿科生活质量量表 3.0 癌症模块量表(PedsQL 3.0)在瑞典癌症患儿样本中的信度和有限有效性。

方法

共有 94 个家庭参与了这项研究,这些家庭的孩子都在西格拉森斯卡大学皇后西尔维亚儿童医院(The Queen Silvia Children's Hospital, Sahlgrenska University)接受治疗。研究中对 63 名年龄在 5-18 岁的癌症患儿(PedsQL 4.0 通用核心量表)和 94 名 2-18 岁的癌症患儿的父母(PedsQL 3.0)进行了调查。

结果

PedsQL 3.0 的内部一致性达到或超过了 Cronbach's alpha 值的 0.70,自我报告和代理报告均如此。PedsQL 4.0 和 PedsQL 3.0 高度相关(代理报告的 r 值为 0.94,自我报告的 r 值为 0.91),表明具有收敛有效性。

结论

PedsQL 3.0 癌症模块量表可以作为一种有用的工具,用于衡量儿童人群的癌症特异性 HRQOL,无论是在研究还是临床实践中。

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The reliability of the Health Related Quality Of Life questionnaire PedsQL 3.0 Diabetes Module™ for Swedish children with type 1 diabetes.
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