Noteboom Eveline A, Perfors Ietje Aa, May Anne M, Stegmann Mariken E, Duijts Saskia Fa, Visserman Ella A, Engelen Vivian, Richel Carol, van der Wall Elsken, de Wit Niek, Helsper Charles W
Julius Center for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht, the Netherlands
Julius Center for Health Sciences and Primary Care, University Medical Centre Utrecht, Utrecht, the Netherlands.
BJGP Open. 2021 Feb 23;5(1). doi: 10.3399/bjgpopen20X101124. Print 2021 Jan.
Shared decision making (SDM) is considered important to realise personalised cancer care. Increased GP involvement after a diagnosis is advocated to improve SDM.
To explore whether patients with cancer are in need of GP involvement in cancer care in general and in SDM, and whether GP involvement occurs.
DESIGN & SETTING: An online national survey was distributed by the Dutch Federation of Cancer Patient Organisations (NFK) in May 2019.
The survey was sent to (former) patients with cancer. Topics included GP involvement in cancer care in general and in SDM. Descriptive statistics and quotes were used.
Among 4763 (former) patients with cancer, 59% ( = 2804) expressed a need for GP involvement in cancer care. Of these patients, 79% ( = 2193) experienced GP involvement. Regarding GP involvement in SDM, 82% of patients ( = 3724) expressed that the GP should 'listen to patients' worries and considerations', 69% ( = 3130) to 'check patients' understanding of information', 66% ( = 3006) to 'discuss patients' priorities in life and the consequences of treatment options for these priorities', and 67% ( = 3045) to 'create awareness of the patient's role in the decision making'. This happened in 47%, 17%, 15% and 10% of these patients, respectively.
The majority of (former) patients with cancer expressed a need for active GP involvement in cancer care. GP support in the fundamental SDM steps is presently insufficient. Therefore, GPs should be made aware of these needs and enabled to support their patients with cancer in SDM.
共同决策（SDM）被认为对实现个性化癌症护理很重要。提倡在诊断后增加全科医生的参与以改善共同决策。
探讨癌症患者总体上是否需要全科医生参与癌症护理及共同决策，以及全科医生是否参与其中。
2019年5月，荷兰癌症患者组织联合会（NFK）开展了一项全国性在线调查。
该调查发送给了癌症（ former）患者。主题包括全科医生总体上及在共同决策中对癌症护理的参与情况。使用了描述性统计和引述。
在4763名癌症（former）患者中，59%（=2804）表示需要全科医生参与癌症护理。在这些患者中，79%（=2193）经历过全科医生的参与。关于全科医生在共同决策中的参与，82%的患者（=3724）表示全科医生应“倾听患者的担忧和考虑”，69%（=3130）应“检查患者对信息的理解”，66%（=3006）应“讨论患者生活中的优先事项以及这些优先事项的治疗选择后果”，67%（=3045）应“提高患者对其在决策中作用的认识”。而这些情况分别在47%、17%、15%和10%的患者中发生。
大多数癌症（former）患者表示需要全科医生积极参与癌症护理。目前全科医生在共同决策基本步骤中的支持不足。因此，应让全科医生意识到这些需求，并使其能够在共同决策中为癌症患者提供支持。
