Misra Amber R, Oermann Marilyn H, Teague Malinda S, Ledbetter Leila S
Clinical Nurse Specialist, Pediatrics and PICU, Kaiser Permanente Medical Center, CA, United States of America.
Thelma M. Ingles Professor of Nursing, Duke University School of Nursing, NC, United States of America.
J Pediatr Nurs. 2021 Jan-Feb;56:64-69. doi: 10.1016/j.pedn.2020.09.014. Epub 2020 Nov 10.
Parental and familial caregivers of a child with a tracheostomy, and possibly home mechanical ventilation (HMV), face the overwhelming task of learning to medically care for their child prior to discharge. Caregivers may cope by seeking health information on the Internet. This is concerning because information found during an Internet search may not be accurate, comprehensive, or up to date. The purpose of this project was to evaluate the quality and content of websites offering information about tracheostomies and HMV using a valid assessment tool.
A total of 46 websites were identified for evaluation using the DISCERN instrument for quality and reliability, and the Flesch Reading Ease (FRE) and Flesh- Kincaid (FK) grade level instruments for readability. Accuracy of content was determined by expert opinion.
Few of the websites met the recommended quality and/or readability levels. The websites recommended had a range of DISCERN scores 21-40, adjusted FRE 61-89.1, and adjusted FK 3.4-6.9. Many of the highest quality websites had a readability level at high school or college levels.
The quality and readability of websites offering caregiver education for tracheostomy and HMV are not at a level suitable for caregivers. There was often a mismatch between DISCERN quality and readability. Many high-quality websites would not be easily read and understood by the general lay population.
DISCERN alone is not sufficient to determine whether a website should be recommended. One should consider reliability, quality, and readability when developing patient education materials, including those on the Internet.
患有气管造口术且可能需要家庭机械通气（HMV）的儿童的父母及家庭护理人员，面临着在孩子出院前学习医疗护理知识这项艰巨任务。护理人员可能会通过在互联网上搜索健康信息来应对。这令人担忧，因为在互联网搜索中找到的信息可能不准确、不全面或不及时。本项目的目的是使用有效的评估工具来评估提供气管造口术和HMV相关信息的网站的质量和内容。
共识别出46个网站，使用DISCERN工具评估质量和可靠性，使用弗莱什易读性（FRE）和弗莱什-金凯德（FK）年级水平工具评估可读性。内容的准确性由专家意见确定。
很少有网站达到推荐的质量和/或可读性水平。推荐的网站DISCERN得分范围为21 - 40，调整后的FRE为61 - 89.1，调整后的FK为3.4 - 6.9。许多质量最高的网站的可读性水平相当于高中或大学水平。
为气管造口术和HMV护理人员提供教育的网站的质量和可读性未达到适合护理人员的水平。DISCERN质量和可读性之间常常不匹配。许多高质量的网站普通大众难以轻松阅读和理解。
仅靠DISCERN不足以确定一个网站是否应被推荐。在开发患者教育材料（包括互联网上的材料）时，应考虑可靠性、质量和可读性。
