Iwanowski Tomasz, Szlązak Piotr, Zabłotna Monika, Olszewska Berenika, Sokołowska-Wojdyło Małgorzata
Dermedica, Gdansk, Poland.
Department of Dermatology, Venerology and Allergology, Medical University of Gdansk, Gdansk, Poland.
Postepy Dermatol Alergol. 2021 Aug;38(4):636-643. doi: 10.5114/ada.2021.108896. Epub 2021 Sep 17.
Vitiligo is an acquired chronic depigmenting disorder of the skin, predominantly asymptomatic. Although vitiligo does not cause direct physical impairment, it is commonly believed that it can produce an important psychosocial burden.
To translate, cross-culturally adapt and validate the vitiligo-specific health-related quality of life instrument (VitiQoL) into Polish.
The study was conducted online on 97 patients with vitiligo from our private outpatient departments in Gdynia and Gdansk, Poland from May 2018 to December 2019.
There was a significant correlation between VitiQoL and DLQI ( = 0.90, < 0.001) and also between VitiQoL-PL and subjects' assessment of the severity of their disease ( = 0.94, < 0.001). We also found a good correlation between the total DLQI and subjects' assessment of the severity of their disease ( = 0.87, < 0.001).
The physicians treating this disease still do not have a specific instrument for assessing patients' QoL in Poland. They have to administer other non-vitiligo specific questionnaires to do so. A Polish version of a specific index for estimating quality of life of patients with vitiligo was validated and implemented through an online survey.
白癜风是一种后天性慢性皮肤色素脱失性疾病，主要无明显症状。尽管白癜风不会造成直接身体损伤，但人们普遍认为它会产生重要的心理社会负担。
将白癜风特异性健康相关生活质量量表（VitiQoL）翻译成波兰语，进行跨文化调适并验证。
2018年5月至2019年12月，在波兰格但斯克和格丁尼亚的私立门诊部对97例白癜风患者进行了在线研究。
VitiQoL与DLQI之间存在显著相关性（=0.90，<0.001），VitiQoL-PL与受试者对自身疾病严重程度的评估之间也存在显著相关性（=0.94，<0.001）。我们还发现总DLQI与受试者对自身疾病严重程度的评估之间存在良好相关性（=0.87，<0.001）。
在波兰，治疗这种疾病的医生仍然没有评估患者生活质量的特定工具。他们必须使用其他非白癜风特异性问卷来进行评估。通过在线调查验证并实施了波兰语版的白癜风患者生活质量评估特定指数。
