Soofi Muhammad A, Jafery Zainab, AlSamadi Faisal
Adult Cardiology, King Fahad Medical City, Riyadh, Saudi Arabia.
J Saudi Heart Assoc. 2020 Oct 22;32(3):456-463. doi: 10.37616/2212-5043.1046. eCollection 2020.
Heart failure drains significant financial resources with morbidity and mortality higher than cancer. Social support is defined as the care provided by the family members, friends and health care workers to the patients. Absence of social support and poor perceived social support will create stress, anxiety, depression and anger which further deteriorate the underlying disease and worsen quality of life. Discussion in group creates better understanding of the disease which helps the patients improving their skills in managing their condition.
To evaluate the impact of multidisciplinary team supervised social support program on components of psychosocial distress and knowledge about heart failure among heart failure patients.
Adult patients with heart failure attending King Fahad Medical City as inpatient or outpatient were enrolled in this prospective cohort study. Patients were given questionnaire to assess their perception of social support they have at their disposal, quality of life, knowledge regarding heart failure and self-care behavior. They then had interactive education in groups supervised by multidisciplinary team members about the pathogenesis of their disease with management strategies, dietary restriction, importance of exercise and healthy life style pattern. Patients shared their experiences in the group and had opportunity to learn from each other. Patients were assessed regarding their perceived social support, quality of life, knowledge regarding heart failure and self-care behavior immediately after the session and at 1 month interval.
There were total 500 patients participated in the study. Among the study participants 62% were male and majority was living with the family. Components of psychosocial distress were present in up to 40% of study participants and only 36% considered knowledgeable regarding heart failure. After the interactive social support group meeting components of psychosocial distress were significantly reduced with significant improvement in knowledge about heart failure. At 1 month follow up participants reported persistent improvement in quality of life, improvement in self-care behavior, perceived social support and wanted to continue in social group program.
Social support program supervised by multidisciplinary team providing education and social support improved knowledge, self-care behavior, perceived social support and quality of life among heart failure patients.
心力衰竭消耗大量财政资源，其发病率和死亡率高于癌症。社会支持被定义为家庭成员、朋友和医护人员为患者提供的照料。缺乏社会支持以及感知到的社会支持不足会产生压力、焦虑、抑郁和愤怒，进而使基础疾病恶化并降低生活质量。小组讨论能更好地理解疾病，有助于患者提高病情管理技能。
评估多学科团队监督的社会支持项目对心力衰竭患者心理社会困扰因素及心力衰竭知识的影响。
在法赫德国王医疗城住院或门诊就诊的成年心力衰竭患者被纳入这项前瞻性队列研究。患者接受问卷调查，以评估他们对自身可获得的社会支持的感知、生活质量、关于心力衰竭的知识以及自我护理行为。然后，他们在多学科团队成员的监督下进行小组互动教育，内容包括疾病的发病机制、管理策略、饮食限制、运动的重要性和健康的生活方式模式。患者在小组中分享他们的经历，并有机会相互学习。在课程结束后及每隔1个月时，对患者的社会支持感知、生活质量、心力衰竭知识和自我护理行为进行评估。
共有500名患者参与了该研究。在研究参与者中，62%为男性，大多数与家人同住。高达40%的研究参与者存在心理社会困扰因素，只有36%的人认为自己了解心力衰竭。互动式社会支持小组会议后，心理社会困扰因素显著减少，对心力衰竭的了解有显著改善。在1个月的随访中，参与者报告生活质量持续改善、自我护理行为改善、社会支持感知改善，并希望继续参加社会小组项目。
由多学科团队监督的社会支持项目提供教育和社会支持，改善了心力衰竭患者的知识、自我护理行为、社会支持感知和生活质量。
