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重度身体残疾者使用社区护理的生活体验:韩国与日本的比较分析。

Life Experiences with Using Community Care among People with Severe Physical Disabilities: A Comparative Analysis between South Korea and Japan.

机构信息

Department of Healthcare and Public Health Research, National Rehabilitation Research Institute, Seoul 01022, Korea.

Division of Public Medical Rehabilitation, National Rehabilitation Center, Seoul 01022, Korea.

出版信息

Int J Environ Res Public Health. 2020 Dec 9;17(24):9195. doi: 10.3390/ijerph17249195.

Abstract

This study identified the pathways chosen by people with severe physical disabilities (PWSPD) in South Korea and Japan in using community care throughout their life and compared their experiences while navigating these pathways from their perspective. A concurrent nested mixed-method design was adopted. Quantitative data analysis included pathway mapping of facilities and services used throughout their lives. For qualitative data, interpretative phenomenological analysis (IPA) was applied. Eleven South Korean (congenital 7, acquired 4) and nine Japanese (congenital 6, acquired 3) participants were surveyed and interviewed. Pathway mapping was conducted by classifying the participants into focus groups. South Korean participants took nine years more than the Japanese participants to reach independence and showed different pathway characteristics. Superordinate themes from the IPA provided insight into the differences in experiences between PWSPD of the two countries: (1) accessibility and continuity of medical services; (2) experience of vocational training; (3) way and degree of social support for independent living; (4) care planning for receiving comprehensive services. In developing a community care model for the PWSPD to accelerate their time to independence, the government should strive for accessibility and connectivity of medical services, strengthen vocational training, social support for independent living, and information provision for the PWSPD.

摘要

本研究确定了韩国和日本严重身体残疾者(PWSPD)在其一生中选择使用社区护理的途径,并从他们的角度比较了他们在这些途径上的导航体验。采用了同时嵌套的混合方法设计。定量数据分析包括对一生中使用的设施和服务的途径进行映射。对于定性数据,应用了解释现象学分析(IPA)。对 11 名韩国(先天性 7 名,后天性 4 名)和 9 名日本(先天性 6 名,后天性 3 名)参与者进行了调查和访谈。通过将参与者分类为焦点小组进行途径映射。韩国参与者达到独立的时间比日本参与者多了九年,并且表现出不同的途径特征。IPA 的高级主题提供了对两国 PWSPD 体验差异的深入了解:(1)医疗服务的可及性和连续性;(2)职业培训体验;(3)独立生活的社会支持方式和程度;(4)接受综合服务的护理计划。为了加速 PWSPD 的独立时间,政府应该努力实现医疗服务的可及性和连接性,加强职业培训,为独立生活提供社会支持,并为 PWSPD 提供信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/c4c3/7764412/739501228a02/ijerph-17-09195-g001.jpg

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