Li Zhuangshuang, McIlfatrick Sonja, Hasson Felicity, Beck Esther-Ruth
School of Nursing and Paramedic Science, Institute of Nursing and Health Research, School of Nursing, Ulster University, Belfast, Northern Ireland.
J Palliat Care. 2025 Jul;40(3):233-243. doi: 10.1177/08258597241301206. Epub 2024 Dec 4.
ObjectiveAdvance care planning (ACP) is increasingly recognized as a public health priority globally, with cultural aspects influencing people's knowledge, attitudes, and behaviours toward ACP. Despite being one of the largest diaspora groups, the Chinese community remains under-researched in this area. This study aims to examine the knowledge, attitudes, and health behaviours related to ACP among Chinese diaspora within a region in the United Kingdom.MethodA cross-sectional online survey based on the Theory of Planned Behaviour was conducted with 284 Chinese adults recruited from four social and voluntary organisations in the United Kingdom.ResultsThe study found low awareness (15%) and knowledge (mean score: 2.26 ± 1.78) of ACP, with less than 5% of the participants engaging with ACP. This contrasted with participants' attitudes (17.24 ± 2.57) and behavioural intention (14.93 ± 3.26) toward ACP, which were generally positive. Behavioural intention was the strongest predictor of engaging with ACP (OR 3.29, 95% CI: 1.35-8.02, = 0.01). Participants with previous end-of-life care experience had a better understanding of ACP; older age and higher knowledge of ACP were associated with more positive attitudes. Cultural beliefs associated with the level of family involvement, legal aspects, and the availability of information in one's first language was significant influences on engagement with ACP.ConclusionsDespite low awareness and engagement with ACP among the Chinese diaspora, positive attitudes and behavioural intention suggest potential for increased engagement. This could be achieved through culturally tailored interventions that address cultural influences and complexity surrounding legal requirements. Further research is needed to develop and test such interventions.
目的
预先照护计划(ACP)日益被视为全球公共卫生的重点事项,文化因素会影响人们对ACP的认知、态度和行为。尽管华人群体是最大的侨民群体之一,但该领域针对华裔社区的研究仍然不足。本研究旨在调查英国某地区华裔侨民中与ACP相关的知识、态度和健康行为。
方法
基于计划行为理论开展了一项横断面在线调查,对从英国四个社会和志愿组织招募的284名华裔成年人进行了调查。
结果
研究发现,参与者对ACP的知晓率较低(15%),知识水平也较低(平均得分:2.26±1.78),只有不到5%的参与者参与过ACP。这与参与者对ACP的态度(17.24±2.57)和行为意向(14.93±3.26)形成对比,他们的态度和行为意向总体上是积极的。行为意向是参与ACP的最强预测因素(比值比3.29,95%置信区间:1.35 - 8.02,P = 0.01)。有过临终护理经历的参与者对ACP有更好的理解;年龄较大和对ACP了解较多与更积极的态度相关。与家庭参与程度、法律方面以及母语信息可用性相关的文化信仰对参与ACP有显著影响。
结论
尽管华裔侨民对ACP的知晓率和参与度较低,但积极的态度和行为意向表明增加参与度具有潜力。这可以通过针对文化影响和围绕法律要求的复杂性进行文化定制干预来实现。需要进一步研究来开发和测试此类干预措施。