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简要报告:职业项目期间生活质量和社会功能的变化——自闭症成年人的试点研究。

Brief report: Changes in quality of life and social functioning during vocational program - a pilot study of autistic adults.

机构信息

Department of Psychiatry, University of Texas Southwestern Medical Center at Dallas at time of data collection, Dallas, TX, USA.

The University of Texas at Dallas, School of Behavioral and Brain Sciences, Dallas, TX, USA.

出版信息

J Autism Dev Disord. 2021 Oct;51(10):3774-3781. doi: 10.1007/s10803-020-04821-9. Epub 2021 Jan 2.

DOI:10.1007/s10803-020-04821-9
PMID:33387243
Abstract

BACKGROUND

Quality of life (QoL), social-emotional and occupational functioning are often diminished in young autistic adults. Measuring these constructs as vocational training outcomes may inform future programming and relevancy of measures.

METHODS

This pilot study analyzed changes in social-emotional functioning and QoL during the involvement at a vocational program for autistic adults using the WHOQOL-BREF, a modified version of the Birchwood- Social Functioning Scale (SFS-m) and a piloted measure. Participants completed these self-reported questionnaires upon admission and at 3 months.

RESULTS

Significant change was found on the SFS-m and two WHOQOL-BREF domains: psychological and environmental.

CONCLUSIONS

This pilot study suggests that autistic adults, similar in characterization, can self-report using these QoL and social measures; further, these measures are sensitive to certain changes over time in such group programs.

摘要

背景

生活质量(QoL)、社会情感和职业功能在年轻自闭症患者中常常受损。将这些构念作为职业培训的结果进行衡量,可能会为未来的规划和措施的相关性提供信息。

方法

本试点研究通过使用 WHOQOL-BREF、经过修改的 Birchwood-社会功能量表(SFS-m)和试点问卷,分析了自闭症成年人参与职业培训计划期间社会情感功能和生活质量的变化。参与者在入院时和 3 个月后完成了这些自我报告问卷。

结果

SFS-m 和 WHOQOL-BREF 的两个领域(心理和环境)都有显著变化。

结论

本试点研究表明,在特征上相似的自闭症成年人可以使用这些生活质量和社会措施进行自我报告;此外,这些措施对该群体在这类团体计划中的某些随时间的变化敏感。

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Autism Res. 2020 Jun;13(6):970-987. doi: 10.1002/aur.2275. Epub 2020 Mar 10.
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Psychiatry Res. 2019 Jun;276:45-55. doi: 10.1016/j.psychres.2019.03.037. Epub 2019 Mar 26.
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