Medical Ethics and Health Policy, University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA
Penn Law, Departments of Africana Studies and Sociology, School of Arts and Sciences, University of Pennsylvani, Philadelphia, Pennsylvania, USA.
J Med Ethics. 2022 Feb;48(2):126-130. doi: 10.1136/medethics-2020-106856. Epub 2021 Jan 6.
Withholding or withdrawing life-saving ventilators can become necessary when resources are insufficient. In the USA, such rationing has unique social justice dimensions. Structural elements of dominant allocation frameworks simultaneously advantage white communities, and disadvantage Black communities-who already experience a disproportionate burden of COVID-19-related job losses, hospitalisations and mortality. Using the example of New Jersey's Crisis Standard of Care policy, we describe how dominant rationing guidance compounds for many Black patients prior unfair structural disadvantage, chiefly due to the way creatinine and life expectancy are typically considered.We outline six possible policy options towards a more just approach: improving diversity in decision processes, adjusting creatinine scores, replacing creatinine, dropping creatinine, finding alternative measures, adding equity weights and rejecting the dominant model altogether. We also contrast these options with making no changes, which is not a neutral default, but in separate need of justification, despite a prominent claim that it is simply based on 'objective medical knowledge'. In the regrettable absence of fair federal guidance, hospital and state-level policymakers should reflect on which of these, or further options, seem feasible and justifiable.Irrespective of which approach is taken, all guidance should be supplemented with a monitoring and reporting requirement on possible disparate impacts. The hope that we will be able to continue to avoid rationing ventilators must not stand in the way of revising guidance in a way that better promotes health equity and racial justice, both to be prepared, and given the significant expressive value of ventilator guidance.
当资源不足时,可能需要保留或撤回救生呼吸机。在美国,这种配给具有独特的社会正义维度。主导分配框架的结构要素同时有利于白人社区,而不利于已经遭受不成比例的 COVID-19 相关失业、住院和死亡负担的黑人社区。我们以新泽西州的危机护理标准政策为例,描述了主导的配给指导如何在许多黑人患者面前加剧了不公平的结构性劣势,主要是由于肌酐和预期寿命的通常考虑方式。我们概述了六种可能的政策选择,以实现更公正的方法:改善决策过程的多样性、调整肌酐评分、用其他方法替代肌酐、放弃肌酐、寻找替代措施、增加公平权重以及完全拒绝主导模式。我们还将这些选择与不进行任何更改进行了对比,尽管有人声称这只是基于“客观医学知识”,但这并不是一个中立的默认选择,而是需要单独证明其合理性。在没有公平的联邦指导的情况下,医院和州一级的政策制定者应该考虑哪些选择或其他选择似乎可行和合理。无论采取哪种方法,所有指导都应补充关于可能存在差异影响的监测和报告要求。我们希望能够继续避免呼吸机配给,但不能以此为借口,不修改指导意见,以更好地促进健康公平和种族正义,这既是为了做好准备,也是因为呼吸机指导具有重要的表达价值。