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类风湿关节炎的功能转归

Functional outcome in rheumatoid arthritis.

作者信息

Thompson P W

出版信息

Br J Rheumatol. 1988;27 Suppl 1:37-43.

PMID:3342293
Abstract

The ability to carry out daily activities depends on an individual's physical and psychological make up, and the environment and society in which he or she lives. Thus, rheumatoid arthritis produces functional impairment that is not simply related to the severity of the disease process. Two-thirds of patients are concerned more with potential loss of function than with discomfort. There is, therefore, a need to assess disability separately from inflammatory activity. The principles of disability measurement concern assessment of performance of everyday activities. Global measures or the performance of one or more specific activities can be used to assess aspects of mobility and manual dexterity. Activities can be related to social life and employment and can include assessment of psychological as well as physical disability. Many different tools are available and can be divided into: 1. Measures depending on clinical judgement. 2. Measures based on observed patient performance. 3. Measures depending on patients' opinions. In addition, a variety of health status measures have been described that include disability as one of a number of parameters aimed to assess the overall impact of the disease on the patient. Evaluation of these tools has been patchy. Full assessment using measurement theory (validity, simplicity, reliability and sensitivity) has not been undertaken for any index. However, the Health Assessment Questionnaire (HAQ) Disability Index and the Arthritis Impact Measurement Scales (AIMS) have both been tested fairly extensively in North America. The choice of a particular measurement tool depends on: 1. The context in which it will be used.(ABSTRACT TRUNCATED AT 250 WORDS)

摘要

进行日常活动的能力取决于个人的身心构成,以及其生活的环境和社会。因此,类风湿性关节炎所导致的功能障碍并非仅仅与疾病进程的严重程度相关。三分之二的患者更关注潜在的功能丧失而非不适。所以,有必要将残疾评估与炎症活动分开。残疾测量的原则涉及对日常活动表现的评估。可以使用整体测量或一项或多项特定活动的表现来评估活动能力和手部灵活性的各个方面。活动可以与社会生活和就业相关,并且可以包括对心理和身体残疾的评估。有许多不同的工具可供使用,可分为:1. 依赖临床判断的测量方法。2. 基于观察患者表现的测量方法。3. 依赖患者意见的测量方法。此外,还描述了多种健康状况测量方法,其中将残疾作为旨在评估疾病对患者总体影响的多个参数之一。对这些工具的评估并不全面。尚未对任何指标进行使用测量理论(效度、简易性、信度和敏感性)的全面评估。然而,健康评估问卷(HAQ)残疾指数和关节炎影响测量量表(AIMS)在北美都进行了相当广泛的测试。选择特定的测量工具取决于:1. 使用它的背景。(摘要截取自250词)

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引用本文的文献

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Eur J Epidemiol. 2001;17(11):1033-41. doi: 10.1023/a:1020006909285.
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Assessment of quality of life in rheumatoid arthritis: methods and implications.类风湿关节炎患者生活质量评估:方法与意义
Pharmacoeconomics. 1994 Apr;5(4):286-98. doi: 10.2165/00019053-199405040-00004.
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Ann Rheum Dis. 1998 Apr;57(4):203-8. doi: 10.1136/ard.57.4.203.
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The GALS locomotor screen and disability.GALS运动筛查与残疾
Ann Rheum Dis. 1993 Dec;52(12):886-90. doi: 10.1136/ard.52.12.886.
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West J Med. 1991 May;154(5):583-6.