University of Sussex, UK.
Hebrew University of Jerusalem, Israel; University of Sussex, UK.
Soc Sci Med. 2021 Feb;270:113675. doi: 10.1016/j.socscimed.2021.113675. Epub 2021 Jan 5.
Contemporary health policy discourse renders individuals responsible for managing their health by means of digital technology. Seeing the digital as productive of citizenship, rather than facilitative of it, this paper unpacks the contested role of technology in acts of digital health citizenship. Drawing on longitudinal data collected in the English healthcare context, this article shows that digital health citizenship is produced through patients' involvement in the generation of health knowledge, including 'big' health data, digital artefacts, experiential knowledge and service feedback. The paper adds to existing literature by disaggregating the contested role of technology in displays of digital health citizenship, showing that digital health technology can give rise to expressions of altruism, belonging, and demands for recognition and change in healthcare, whilst responsibilising citizens for the care of themselves and others. The discussion shows how, rather than merely facilitating the actions of a free and autonomous subject, this citizenship often becomes algorithmically produced (e.g. through nudges) and remains isolated to separate instances of engagement without a long-term orientation. Our study enriches the growing sociological literature on health citizenship by exploring how digital technology produces health citizenship at the intersection of biosociality and technosociality.
当代健康政策话语使个人通过数字技术来管理自己的健康。本文认为,数字技术是公民身份的产生因素,而不是促进因素,从而揭示了技术在数字健康公民身份行为中的有争议的作用。本文通过在英国医疗保健背景下收集的纵向数据,表明数字健康公民身份是通过患者参与健康知识的产生而产生的,包括“大数据”、数字人工制品、经验知识和服务反馈。本文通过分解数字健康公民身份展示中技术的有争议作用,为现有文献做出了贡献,表明数字健康技术可以引发利他主义、归属感以及对医疗保健领域的认可和变革的诉求,同时使公民对自己和他人的护理负责。讨论表明,这种公民身份并没有像仅仅促进自由和自主主体的行动那样,它常常是通过算法产生的(例如通过提示),并且仍然孤立于没有长期定位的单独参与实例。我们的研究通过探索数字技术如何在生物社会性和技术社会性的交叉点产生健康公民身份,丰富了关于健康公民身份的不断增长的社会学文献。