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当代不健康的视觉形象:论疾病模式的社会(媒体)建构

Contemporary visualities of ill health: On the social (media) construction of disease regimes.

作者信息

Vicari Stefania, Ditchfield Hannah, Chuang Yuning

机构信息

Department of Sociological Studies, The University of Sheffield, Sheffield, UK.

出版信息

Sociol Health Illn. 2025 Jan;47(1):e13846. doi: 10.1111/1467-9566.13846. Epub 2024 Sep 20.

DOI:10.1111/1467-9566.13846
PMID:39302032
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11684507/
Abstract

First-person representations of illness have been studied as key to the cultural fabric disrupting dominant practices of ill health or disease regimes. However, the role that digital platforms play in shaping this fabric in contemporary societies has been mostly overlooked. We address this gap by investigating how mainstream social media, as mundane spaces modelled by corporate-driven techno-commercial structures, frame specific forms of visuality or ways to see ill health. We reflect on how these forms of visuality relate to existing disease regimes. The article presents an investigation of popular images of BReast CAncer (BRCA) hereditary cancer syndromes posted on Instagram, Twitter (now X) or Facebook over the course of 12 months. By combining cultural analytics, visual network analysis and interpretive techniques, we explore the emergence of platform-specific visual vernaculars and the visual genres of ill health emerging from these vernaculars. Our analysis suggests that, in the context of BRCA hereditary cancer syndromes, popular social media images primarily exacerbate existing racialised and gendered practices. Where alternative views emerge, in their being shaped by platforms' attention economies, they often operate in what we define as a 'liminal space' of imagination - one that hints at renewed, but not necessarily disruptive and certainly not radical ways to imagine ill health.

摘要

疾病的第一人称表述已被视为文化结构的关键,它打破了健康不佳或疾病模式的主导做法。然而,数字平台在当代社会塑造这种结构中所起的作用大多被忽视了。我们通过研究主流社交媒体(作为由企业驱动的技术商业结构塑造的世俗空间)如何构建特定的视觉形式或看待健康不佳的方式来填补这一空白。我们思考这些视觉形式如何与现有的疾病模式相关联。本文对在12个月内发布在照片墙、推特(现称X)或脸书上的乳腺癌(BRCA)遗传性癌症综合征的热门图片进行了调查。通过结合文化分析、视觉网络分析和解释技术,我们探索特定平台视觉方言的出现以及从这些方言中衍生出的健康不佳的视觉类型。我们的分析表明,在BRCA遗传性癌症综合征的背景下,热门社交媒体图片主要加剧了现有的种族化和性别化做法。当出现不同观点时,由于它们受到平台注意力经济的影响,它们往往在我们定义的想象的“阈限空间”中运作——这个空间暗示了重新想象健康不佳的方式,但不一定具有颠覆性,当然也不激进。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/5b28e7c9285f/SHIL-47-0-g007.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/63aef5ca80bb/SHIL-47-0-g003.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/62d929ad1f9d/SHIL-47-0-g005.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/5b28e7c9285f/SHIL-47-0-g007.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/63aef5ca80bb/SHIL-47-0-g003.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/842466cad7aa/SHIL-47-0-g004.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/90dd95aedd42/SHIL-47-0-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/19f35f217134/SHIL-47-0-g006.jpg
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https://cdn.ncbi.nlm.nih.gov/pmc/blobs/848a/11684507/5b28e7c9285f/SHIL-47-0-g007.jpg

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本文引用的文献

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"Where do I go? Who do I go to?": BRCA Previvors, genetic counselors and family planning.“我该何去何从?我该求助于谁?”:BRCA基因携带者、遗传咨询师与计划生育
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Knowledge, community and care: Digital biocitizenship in gestational diabetes.知识、社区与关怀:妊娠期糖尿病的数字生物公民身份
Sociol Health Illn. 2022 Nov;44(9):1408-1426. doi: 10.1111/1467-9566.13516. Epub 2022 Aug 16.
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Previvorship Posting: Why Breast Cancer Previvors Share Their Stories on Social Media.
生存者发帖:为什么乳腺癌生存者在社交媒体上分享自己的故事。
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Using social media as a platform to publicly disclose HIV status among people living with HIV: Control, identity, informing public dialogue.利用社交媒体作为平台公开披露 HIV 感染者的 HIV 状况:控制、身份认同、告知公众对话。
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