Bose Catarina Nahlén, Saboonchi Fredrik, Persson Hans, Björling Gunilla, Elfström Magnus L
Department of Health Sciences, The Swedish Red Cross University College, Huddinge, Sweden.
Department of Clinical Sciences, Danderyd Hospital, Karolinska Institutet, Stockholm, Sweden.
J Patient Exp. 2020 Dec;7(6):1054-1061. doi: 10.1177/2374373520916012. Epub 2020 Apr 2.
Although patients with chronic heart failure (CHF) often experience psychological distress, psychosocial aspects are not an integral part of their treatment and care. The aim is to describe the adaptation of Coping Effectiveness Training for patients with CHF and the participants' reported experiences. The intervention workbook and manual were translated into Swedish and adapted for patients with CHF. Patient-reported experience from 33 of 35 participants, that had completed the psychosocial intervention, was measured with an evaluation form consisting of closed and open-ended questions. Most participants thought they benefited from the intervention, were pleased with the structure and did not want to add anything to the program. The benefits experienced were learning how to cope with the illness and meeting other people to share and discuss experiences. There was a variation concerning the group process of how much direction should be given during the discussions. Overall, unique data from patient-reported experience measure showed that the participants were satisfied with the psychosocial intervention, applied for the first time to patients with CHF.
尽管慢性心力衰竭（CHF）患者常常经历心理困扰，但社会心理方面并非其治疗与护理的一个组成部分。目的是描述应对效能训练对CHF患者的适应性以及参与者报告的体验。干预工作手册和指南被翻译成瑞典语并针对CHF患者进行了改编。使用一份由封闭式和开放式问题组成的评估表，对完成社会心理干预的35名参与者中的33名患者报告的体验进行了测量。大多数参与者认为他们从干预中受益，对其结构感到满意，并且不想对该项目添加任何内容。所体验到的益处包括学习如何应对疾病以及结识其他人以分享和讨论经历。在讨论期间应给予多少指导的小组过程方面存在差异。总体而言，来自患者报告体验测量的独特数据表明，参与者对首次应用于CHF患者的社会心理干预感到满意。
