婴儿自闭症谱系障碍预测的伦理问题。
The Ethics of Predicting Autism Spectrum Disorder in Infancy.
机构信息
University of Washington, Seattle; Treuman Katz Center for Pediatric Bioethics, Seattle Children's Research Institute, Washington.
University of Washington, Seattle.
出版信息
J Am Acad Child Adolesc Psychiatry. 2021 Aug;60(8):942-945. doi: 10.1016/j.jaac.2021.01.006. Epub 2021 Jan 19.
Abstract
Toward the end of a routine check-in appointment with your young patient-a 3-year-old boy recently diagnosed with autism spectrum disorder (ASD)-his mother shares concerns about his infant sister, currently 6 months old. The mother is aware that her daughter is at increased risk for ASD. She requests a magnetic resonance imaging (MRI) scan of her infant's brain, based on research she has read showing that MRI can be used to predict which infants will go on to develop ASD. The mother communicates that she is eager to know whether her daughter is going to develop autism so that she and her husband can prepare financially, and so she can place her daughter on the long waitlist for autism-specific services in her local community. As this family's psychiatrist, how should you respond to her request?
摘要
在与你年幼的患者（一名最近被诊断出患有自闭症谱系障碍的 3 岁男孩）的常规就诊接近尾声时，他的母亲表达了对其 6 个月大的婴儿妹妹的担忧。母亲知道她的女儿患自闭症谱系障碍的风险增加。她根据自己读到的研究请求对她女儿的大脑进行磁共振成像（MRI）扫描，该研究表明 MRI 可用于预测哪些婴儿将发展为自闭症谱系障碍。母亲表示，她渴望知道女儿是否会患上自闭症，以便她和她的丈夫可以为此做好经济上的准备，这样她就可以为女儿在当地社区的自闭症特定服务中排上长队。作为这个家庭的精神科医生，你应该如何回应她的请求？
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