肌痛性脑脊髓炎/慢性疲劳综合征患者的居家状态与卧床状态对比
Homebound versus Bedridden Status among Those with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.
作者信息
Conroy Karl, Bhatia Shaun, Islam Mohammed, Jason Leonard A
机构信息
Center for Community Research, DePaul University, Chicago, IL 60614, USA.
出版信息
Healthcare (Basel). 2021 Jan 20;9(2):106. doi: 10.3390/healthcare9020106.
Abstract
Persons living with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) vary widely in terms of the severity of their illness. It is estimated that of those living with ME/CFS in the United States, about 385,000 are homebound. There is a need to know more about different degrees of being homebound within this severely affected group. The current study examined an international sample of 2138 study participants with ME/CFS, of whom 549 were severely affected (operationalized as 'Homebound'). A subsample of 89 very severely affected participants (operationalized as 'Homebound-bedridden') was also examined. The findings showed a significant association between severely and very severely affected participants within the post-exertional malaise (PEM) symptom domain. The implications of these findings are discussed.
摘要
患有肌痛性脑脊髓炎/慢性疲劳综合征（ME/CFS）的人病情严重程度差异很大。据估计，在美国患有ME/CFS的人中，约有38.5万人居家不出。有必要进一步了解这个严重受影响群体中不同程度的居家不出情况。当前的研究调查了来自2138名患有ME/CFS的研究参与者的国际样本，其中549人受到严重影响（定义为“居家不出”）。还对89名受影响非常严重的参与者（定义为“居家卧床不起”）的子样本进行了调查。研究结果表明，在运动后不适（PEM）症状领域，受严重影响和受非常严重影响的参与者之间存在显著关联。本文讨论了这些研究结果的意义。
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