Department of Social Sciences and Health Policy, Wake Forest School of Medicine, 525 Vine Street, Winston-Salem, NC, 27101, USA.
UNC Adolescent and Young Adult Cancer Program, Lineberger Comprehensive Cancer Center, 101 Manning Dr, Chapel Hill, NC, 27514, USA.
Support Care Cancer. 2021 Aug;29(8):4693-4704. doi: 10.1007/s00520-021-06024-z. Epub 2021 Jan 29.
In the USA, many of the nearly 90,000 adolescents and young adults (AYAs) diagnosed with cancer each year do not receive services to address the full scope of needs they experience during and after cancer treatment. To facilitate a systematic and patient-centered approach to delivering services to address the unmet needs of AYAs with cancer, we developed the AYA Needs Assessment & Service Bridge (NA-SB).
To develop NA-SB, we leveraged user-centered design, an iterative process for intervention development based on prospective user (i.e., provider and AYA) engagement. Specifically, we conducted usability testing and concept mapping to refine an existing tool-the Cancer Needs Questionnaire-Young People-to promote its usability and usefulness in routine cancer practice.
Our user-centered design process yielded a need assessment which assesses AYAs' physical, psychosocial, and practical needs. Importantly, needs in the assessment are grouped by services expected to address them, creating an intuitive and actionable link between needs and services.
NA-SB has the potential to improve care coordination at the individual level by allowing cancer care programs to tailor service delivery and resource provision to the individual needs of AYAs they serve.
在美国，每年近 9 万名被诊断患有癌症的青少年和年轻人（AYA）中，许多人没有获得服务来解决他们在癌症治疗期间和之后所经历的全部需求。为了促进一种系统的、以患者为中心的方法来提供服务，以满足患有癌症的 AYA 的未满足需求，我们开发了 AYA 需求评估和服务桥梁（NA-SB）。
为了开发 NA-SB，我们利用了以用户为中心的设计，这是一种基于预期用户（即提供者和 AYA）参与的干预措施开发的迭代过程。具体来说，我们进行了可用性测试和概念映射，以改进现有的工具——癌症需求问卷-年轻人，以提高其在常规癌症实践中的可用性和实用性。
我们的以用户为中心的设计过程产生了一项需求评估，评估 AYA 的身体、心理社会和实际需求。重要的是，评估中的需求按预期提供服务的类别进行分组，在需求和服务之间建立了直观和可操作的联系。
NA-SB 有可能通过允许癌症护理计划根据他们所服务的 AYA 的个体需求来定制服务交付和资源提供，从而改善个体层面的护理协调。
