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Guidance to Support the Implementation of Specialized Adolescent and Young Adult Cancer Care: A Qualitative Analysis of Cancer Programs.支持实施青少年和青年癌症专科护理的指南:癌症项目的定性分析。
JCO Oncol Pract. 2022 Sep;18(9):e1513-e1521. doi: 10.1200/OP.22.00063. Epub 2022 Jun 24.
2
Health Insurance Payer Type and Ethnicity Are Associated with Cancer Clinical Trial Enrollment Among Adolescents and Young Adults.健康保险支付类型和种族与青少年和年轻成年人癌症临床试验入组相关。
J Adolesc Young Adult Oncol. 2022 Feb;11(1):104-110. doi: 10.1089/jayao.2021.0008. Epub 2021 May 19.
3
An actionable needs assessment for adolescents and young adults with cancer: the AYA Needs Assessment & Service Bridge (NA-SB).适用于癌症青少年和青年的可操作需求评估:青少年和青年癌症患者需求评估和服务衔接(NA-SB)。
Support Care Cancer. 2021 Aug;29(8):4693-4704. doi: 10.1007/s00520-021-06024-z. Epub 2021 Jan 29.
4
Models of care for adolescent and young adult cancer programs.青少年和青年癌症项目的照护模式。
Pediatr Blood Cancer. 2019 Dec;66(12):e27991. doi: 10.1002/pbc.27991. Epub 2019 Sep 16.
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J Adolesc Young Adult Oncol. 2018 Oct;7(5):612-617. doi: 10.1089/jayao.2018.0015. Epub 2018 Jul 9.
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Inside help: An integrative review of champions in healthcare-related implementation.内部助力:对医疗保健相关实施中的倡导者的综合综述
SAGE Open Med. 2018 May 17;6:2050312118773261. doi: 10.1177/2050312118773261. eCollection 2018.
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Adolescent and Young Adult Oncology, Version 2.2018, NCCN Clinical Practice Guidelines in Oncology.青少年及青年肿瘤学,版本 2.2018,NCCN 肿瘤学临床实践指南。
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制定全面的青少年和青年癌症项目计划:7 年成长与进步的经验教训。

Developing a Comprehensive Adolescent and Young Adult Cancer Program: Lessons Learned from 7 Years of Growth and Progress.

机构信息

Department of Implementation Science, Wake Forest School of Medicine, Winston-Salem, North Carolina, USA.

UNC Adolescent and Young Adult Cancer Program, Lineberger Comprehensive Cancer Center, Chapel Hill, North Carolina, USA.

出版信息

J Adolesc Young Adult Oncol. 2023 Dec;12(6):868-878. doi: 10.1089/jayao.2023.0015. Epub 2023 May 4.

DOI:10.1089/jayao.2023.0015
PMID:37155196
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10777816/
Abstract

Every year, nearly 100,000 adolescents and young adults (15-39 years, AYAs) are diagnosed with cancer in the United States and many have unmet physical, psychosocial, and practical needs during and after cancer treatment. In response to demands for improved cancer care delivery for this population, specialized AYA cancer programs have emerged across the country. However, cancer centers face multilevel barriers to developing and implementing AYA cancer programs and would benefit from more robust guidance on how to approach AYA program development. To contribute to this guidance, we describe the development of an AYA cancer program at the University of North Carolina (UNC) Lineberger Comprehensive Cancer Center. We summarize the evolution of UNC's AYA Cancer Program since it was established in 2015, offering pragmatic strategies for developing, implementing, and sustaining AYA cancer programs. The development of the UNC AYA Cancer Program since 2015 has generated many lessons learned that we hope may be informative to other cancer centers seeking to build specialized services for AYAs.

摘要

每年,近 10 万名青少年和年轻人(15-39 岁,AYAs)被诊断出患有癌症,他们在癌症治疗期间和之后都有未满足的身体、心理社会和实际需求。为了满足对这一人群更好的癌症护理服务的需求,专门的 AYA 癌症项目已经在美国各地出现。然而,癌症中心在发展和实施 AYA 癌症项目方面面临多层次的障碍,他们将受益于更有力的指导,以了解如何开展 AYA 项目的发展。为了提供这方面的指导,我们描述了北卡罗来纳大学(UNC)Lineberger 综合癌症中心 AYA 癌症项目的发展情况。我们总结了自 2015 年成立以来 UNC 的 AYA 癌症项目的发展演变,为发展、实施和维持 AYA 癌症项目提供了实用策略。自 2015 年以来,UNC 的 AYA 癌症项目的发展产生了许多经验教训,我们希望这些经验教训可能对其他寻求为 AYA 建立专门服务的癌症中心有帮助。