Ip Athena, Muller Ingrid, Geraghty Adam W A, Platt Duncan, Little Paul, Santer Miriam
School of Primary Care, Population Sciences and Medical Education, Faculty of Medicine, University of Southampton, Southampton, UK
Faculty of Health and Medical Sciences, School of Health Sciences, University of Surrey, Guildford, Surrey, UK.
BMJ Open. 2021 Feb 1;11(2):e041794. doi: 10.1136/bmjopen-2020-041794.
The objective of this study was to systematically review and synthesise qualitative papers exploring views and experiences of acne and its treatments among people with acne, their carers and healthcare professionals (HCPs).
Systematic review and synthesis of qualitative papers.
Papers were identified through Medline, EMBASE, PubMed, PsychINFO and CINAHL on 05 November 2019, forward and backward citation searching, Google Scholar and contacting authors. Inclusion criteria were studies reporting qualitative data and analysis, studies carried out among people with acne, their carers or HCPs and studies comprising different skin conditions, including acne. The title and abstracts of papers were independently screened by three researchers. Appraisal was carried out using the adapted Critical Appraisal Skills Programme tool. Thematic synthesis was used to synthesise findings.
A total of 20 papers were included from six countries. Papers explored; experiences living with acne, psychosocial impact of acne, views on causation of acne, perceptions of acne treatments, ambivalence and ambiguity in young people's experience of acne and HCPs' attitudes towards acne management. Findings suggest that people often viewed acne as short-term and that this had implications for acne management, particularly long-term treatment adherence. People often felt that the substantial impact of acne was not recognised by others, or that their condition was 'trivialised' by HCPs. The sense of a lack of control over acne and control over treatment was linked to both psychological impact and treatment adherence. Concerns and uncertainty over acne treatments were influenced by variable advice and information from others.
People need support with understanding the long-term management of acne, building control over acne and its treatments, acknowledging the impact and appropriate information to reduce the barriers to effective treatment use.
CRD42016050525.
本研究的目的是系统回顾和综合定性研究论文，以探究痤疮患者、其护理人员及医疗保健专业人员（HCPs）对痤疮及其治疗的看法和经历。
定性研究论文的系统回顾和综合。
于2019年11月5日通过Medline、EMBASE、PubMed、PsychINFO和CINAHL检索论文，进行向前和向后的引文检索，利用谷歌学术搜索并联系作者。纳入标准为报告定性数据和分析的研究、在痤疮患者、其护理人员或HCPs中开展的研究以及包含不同皮肤状况（包括痤疮）的研究。由三名研究人员独立筛选论文的标题和摘要。使用经改编的批判性评估技能计划工具进行评估。采用主题综合法对研究结果进行综合。
共纳入来自六个国家的20篇论文。论文探讨了：痤疮患者的生活经历、痤疮的心理社会影响、对痤疮病因的看法、对痤疮治疗的认知、年轻人痤疮经历中的矛盾心理和模糊性以及HCPs对痤疮管理的态度。研究结果表明，人们通常将痤疮视为短期问题，这对痤疮管理有影响，尤其是长期治疗依从性。人们常常觉得其他人没有认识到痤疮的重大影响，或者他们的病情被HCPs“轻视”。对痤疮缺乏控制感以及对治疗的控制感与心理影响和治疗依从性都有关联。对痤疮治疗的担忧和不确定性受到他人不同建议和信息的影响。
人们在理解痤疮的长期管理、增强对痤疮及其治疗的控制、认识其影响以及获取适当信息以减少有效治疗使用障碍方面需要得到支持。
PROSPERO注册号：CRD42016050525。
