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关节炎患者与社区:农村和城市地区关节炎患者的比较。

The arthritis sufferer and the community: a comparison of arthritis sufferers in rural and urban areas.

作者信息

Cornelissen P G, Rasker J J, Valkenburg H A

机构信息

Department of Epidemiology, Erasmus University, Rotterdam, The Netherlands.

出版信息

Ann Rheum Dis. 1988 Feb;47(2):150-6. doi: 10.1136/ard.47.2.150.

DOI:10.1136/ard.47.2.150
PMID:3355250
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1003468/
Abstract

One hundred and two rural patients and 100 urban patients with rheumatoid arthritis and osteoarthrosis and 203 age and sex matched controls were visited in their homes to evaluate their problems, needs, and expectations. Although one would expect disability to affect the mobility of a person, it was found that rural patients were more mobile than their urban counterparts despite the same degree of functional disability. They were more content with their lot, even though their circumstances were less favourable. Both groups of patients had little contact with their general practitioners, social workers, or district nurses, and lacked information about their disease and the availability of financial grants or home adaptations. The main problem for the individual patient was not pain, but the frustration of being unable to do things they used to do and of dependency on others.

摘要

研究人员走访了102名患有类风湿性关节炎和骨关节炎的农村患者、100名城市患者以及203名年龄和性别匹配的对照对象,以评估他们的问题、需求和期望。尽管人们通常认为残疾会影响人的行动能力,但研究发现,尽管两组患者的功能残疾程度相同,但农村患者比城市患者的行动能力更强。尽管农村患者的处境更不利,但他们对自己的命运更满意。两组患者与他们的全科医生、社会工作者或社区护士的接触都很少,并且缺乏关于自身疾病以及财政补助或家庭改造方面的信息。对于个体患者来说,主要问题不是疼痛,而是无法做过去能做的事情以及依赖他人所带来的挫折感。

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本文引用的文献

1
DIAGNOSTIC criteria for rheumatoid arthritis: 1958 revision by a committee of the American Rheumatism Association.类风湿关节炎的诊断标准:美国风湿病协会委员会1958年修订版。
Ann Rheum Dis. 1959 Mar;18(1):49-51; French transl 51-2; Spanish transl 52-3.
2
What makes persons "patients" and patients "well?是什么让人们成为“患者”,又是什么让患者“康复”?
Am J Med. 1980 Aug;69(2):277-86. doi: 10.1016/0002-9343(80)90389-7.
3
Research is for now, too.研究也是为了当下。
J Rheumatol. 1981 May-Jun;8(3):361-3.
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The AIMS approach to health status measurement: conceptual background and measurement properties.健康状况测量的AIMS方法:概念背景与测量属性
J Rheumatol. 1982 Sep-Oct;9(5):785-8.
5
The use of 'alternative treatments' by patients with rheumatoid arthritis.类风湿关节炎患者对“替代疗法”的使用。
Rheumatol Int. 1983;3(4):151-2. doi: 10.1007/BF00541593.