“它定义了我是谁”还是“它是我所拥有的东西”：澳大利亚成年自闭症患者更喜欢哪种表述方式？
"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?
作者信息
Bury Simon M, Jellett Rachel, Spoor Jennifer R, Hedley Darren
机构信息
Olga Tennison Autism Research Centre, School of Psychology and Public Health, La Trobe University, Melbourne, VIC, 3086, Australia.
La Trobe Business School, College of Arts, Social Sciences and Commerce, La Trobe University, Melbourne, Australia.
出版信息
J Autism Dev Disord. 2023 Feb;53(2):677-687. doi: 10.1007/s10803-020-04425-3.
There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.
最近，在描述自闭症时，出现了从以人为主的语言向以身份为主的语言的转变。在这项研究中，报告被诊断患有自闭症的澳大利亚成年人（N = 198）对自闭症相关术语的偏好和冒犯性进行了评分和排序，并在自由文本中解释了他们的选择。“自闭症患者”“自闭症谱系人士”和“自闭症个体”总体上被评为最受欢迎且最无冒犯性。排序均值显示，“自闭症谱系人士”总体上是最受欢迎的术语。六个定性主题反映了：（1）自闭症是核心，或（2）是个人身份的一部分，（3）“谱系”反映多样性，（4）拒绝污名化和（5）医学化语言，以及（6）语用学。这些发现凸显了就个人语言偏好进行包容性对话的重要性。
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