Bennett Gabrielle, Richmond Jacqueline, Thompson Alexander J
Department of Gastroenterology, St Vincent's Hospital Melbourne, 41 Victoria Parade, Fitzroy, Vic. 3065, Australia; and Corresponding author. Emails:
The Burnet Institute, Disease Elimination, Commercial Road, Melbourne, Vic. 3000, Australia; and La Trobe University, The Australian Research Centre in Sex, Health and Society, Bundoora, Vic. 3083, Australia; and Department of Nursing, Faculty of Medicine, Dentistry and Health Sciences, The University of Melbourne, Melbourne, Vic. 3000, Australia.
Aust J Prim Health. 2021 Feb;27:116-121. doi: 10.1071/PY20188.
Globally, approximately 257 million people are living with chronic hepatitis B. Many people are undiagnosed, have low health literacy and experience barriers to engaging in care. In Australia, there is a lack of culturally and linguistically appropriate resources to support people living with the infection to increase their understanding and build their capacity. This innovative practice paper describes the process of developing a culturally and linguistically appropriate resource using the principles of participatory action research. The hepatitis B story was designed to facilitate discussion between healthcare workers and consumers, and to increase the knowledge and understanding of both. Consultation with consumers and a broad range of health services contributed to the quality of and demand for the resource. A case study tells the story of 'Thuy'. This case study demonstrates the practical application of the resource and describes the positive affect its use had on Thuy and her family. Increasing our understandings of how people experience chronic hepatitis B is crucial to improving health information, testing and engagement in care. Producing health information with consumers is a worthwhile process to increase consumers' health literacy and improve service delivery.
全球约有2.57亿人患有慢性乙型肝炎。许多人未被诊断出来,健康素养较低,在接受治疗方面存在障碍。在澳大利亚,缺乏文化和语言上合适的资源来支持感染者增进理解并增强能力。这篇创新性的实践论文描述了运用参与式行动研究原则开发一种文化和语言上合适的资源的过程。《乙肝的故事》旨在促进医护人员与患者之间的讨论,并增进双方的知识和理解。与患者及广泛的健康服务机构进行协商提高了该资源的质量和需求。一个案例研究讲述了“翠”的故事。这个案例研究展示了该资源的实际应用,并描述了其使用对翠及其家人产生的积极影响。加深我们对人们如何经历慢性乙型肝炎的理解对于改善健康信息、检测和治疗参与度至关重要。与患者共同制作健康信息是提高患者健康素养和改善服务提供的一个有价值的过程。