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社会支持和生活质量在四川省严重精神疾病患者农村家庭照顾者中:照顾负担和孤独感的中介作用。

Social support and quality of life among rural family caregivers of persons with severe mental illness in Sichuan Province, China: mediating roles of care burden and loneliness.

机构信息

West China School of Public Health and West China Fourth Hospital, Sichuan University, Chengdu, China.

Department of Mental Health Law & Policy, College of Behavioral & Community Sciences, University of South Florida, Tampa, FL, USA.

出版信息

Qual Life Res. 2021 Jul;30(7):1881-1890. doi: 10.1007/s11136-021-02793-6. Epub 2021 Mar 1.

Abstract

OBJECTIVE

To explore the relationship between social support and quality of life (QoL) among family caregivers of persons with severe mental illness (SMI) and examine the mediating roles of care burden and loneliness.

METHODS

A cross-sectional study was carried out between December 2017 and May 2018. A random sample of 256 family caregivers of persons with SMI in rural areas of Sichuan Province, China was recruited for participation. Survey data on socio-demographics, social support, care burden, loneliness, and QoL were collected via in-person interviews. Multiple linear regression analysis and structural equation modeling (SEM) were used to test the hypothesized relationships.

RESULTS

The majority (72.7%) of family caregivers of persons with SMI in this study reported having low QoL. Social support was positively associated with QoL and negatively associated with care burden and loneliness. The findings suggested the mediating roles of care burden and loneliness on the association between social support and QoL.

CONCLUSION

The hypothesized model was found to be a suitable model for predicting QoL among family caregivers of persons with SMI. The findings can help inform the design of future interventions aimed at enhancing social support, reducing care burden and loneliness, which may be helpful to improve caregivers' QoL. Future study is required to find a causal path to promote QoL among family caregivers of persons with SMI.

摘要

目的

探讨严重精神障碍患者家属的社会支持与生活质量(QoL)之间的关系,并检验照顾负担和孤独感的中介作用。

方法

本研究采用横断面研究,于 2017 年 12 月至 2018 年 5 月期间在中国四川省农村地区随机抽取了 256 名严重精神障碍患者家属进行调查。通过面对面访谈收集了社会人口统计学、社会支持、照顾负担、孤独感和生活质量等方面的调查数据。采用多元线性回归分析和结构方程模型(SEM)来检验假设的关系。

结果

研究中,大多数(72.7%)严重精神障碍患者家属报告生活质量较低。社会支持与生活质量呈正相关,与照顾负担和孤独感呈负相关。研究结果表明,照顾负担和孤独感在社会支持与生活质量之间的关系中起中介作用。

结论

假设模型被证明是预测严重精神障碍患者家属生活质量的合适模型。研究结果有助于为未来旨在增强社会支持、减轻照顾负担和孤独感的干预措施提供信息,这可能有助于改善照顾者的生活质量。需要进一步研究以确定促进严重精神障碍患者家属生活质量的因果路径。

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