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识别被诊断为血液系统恶性肿瘤患者的照顾者的心理和社会问题。

Identification of Psychological and Social Problems in Caregivers of Individuals Diagnosed with Hematologic Malignancy.

作者信息

Karacan Yasemin, Akkus Yeliz, Ozcelik Emine Tulay, Ali Ridvan

机构信息

Division of Nursing, Health Science Faculty, Bursa Uludag University, Bursa, Turkey.

Division of Nursing, Faculty of Health Science, Kafkas University, Kars, Turkey.

出版信息

Asia Pac J Oncol Nurs. 2021 Jan 29;8(2):204-210. doi: 10.4103/apjon.apjon_53_20. eCollection 2021 Mar-Apr.

Abstract

OBJECTIVE

Caring for patients with hematological malignancy could lead to many problems in different aspects regarding the lives of caregivers. However, there is limited data on the emotional and social problems of caregivers, who deal with patients of hematological malignancy. The aim of this study is to determine the emotional and social problems in caregivers of individuals diagnosed with hematological malignancy.

METHODS

The study was carried out descriptively to identify the emotional and social problems in the relatives of the patients diagnosed with hematological malignancy as their caregivers, as well as the factors affecting these problems. The data of the study were collected with the Introductory Information Form and Identification of Emotional and Social Problems Form that were administered to the relatives of the patients. The data were evaluated by using Spearman's Rho correlation analysis and the Logit analysis in Statistical Package for the Social Sciences software.

RESULTS

Among the caregivers, 59.8% were in the age group of 30-51 years, and 66.2% were female. Of the caregivers, 70.1% had difficulty in fulfilling their responsibilities. Spiritual distress had the highest score among the emotional problems, and experiencing caregiver strain had the highest score among the social problems. In the Logit model, the changes in the professional life was the variable that affects the emotional and social problems the most and significantly. In addition, emotional problems were affected by the financial problems at a statistically significant level.

CONCLUSIONS

In this study, it is suggested that the caregivers should be provided with certain conveniences in their professional lives based on the fact that the problem, which affected emotional and social problems the most, is the change in the professional life; it is recommended that further studies should be carried out on the caregivers.

摘要

目的

照料血液系统恶性肿瘤患者可能会给照料者的生活带来诸多不同方面的问题。然而,关于照料血液系统恶性肿瘤患者的照料者的情感和社会问题的数据有限。本研究的目的是确定被诊断患有血液系统恶性肿瘤患者的照料者的情感和社会问题。

方法

本研究采用描述性方法,以确定被诊断患有血液系统恶性肿瘤患者的亲属作为照料者时的情感和社会问题,以及影响这些问题的因素。研究数据通过向患者亲属发放的《基本信息表》和《情感与社会问题识别表》收集。数据在社会科学统计软件包中使用斯皮尔曼等级相关分析和逻辑分析进行评估。

结果

在照料者中,59.8%年龄在30 - 51岁之间,66.2%为女性。70.1%的照料者在履行职责方面存在困难。情感问题中精神困扰得分最高,社会问题中经历照料者压力得分最高。在逻辑模型中,职业生活的变化是对情感和社会问题影响最大且显著的变量。此外,情感问题在统计学上受经济问题的影响。

结论

在本研究中,基于对情感和社会问题影响最大的问题是职业生活的变化这一事实,建议在照料者职业生活中为其提供一定便利;建议对照料者开展进一步研究。

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