Univ. Lyon, Université Claude Bernard Lyon 1, HESPER EA 7425, Lyon, France.
GRePS Lyon 2 Université, University of Lyon, Bron, France.
PLoS One. 2019 Oct 23;14(10):e0223681. doi: 10.1371/journal.pone.0223681. eCollection 2019.
As acute stroke services improve, more persons experience mild stroke and need to cope daily with hidden disabilities, which may be influenced by how they perceive stroke, cognitively and emotionally.
To investigate cognitive illness beliefs and emotional responses in persons with mild stroke and their possible influences on daily coping.
Semi-structured interviews were conducted with 24 persons with mild stroke, on average 7.5 months (±0.89) after stroke occurrence. A thematic analysis on verbatim transcripts was guided by the Common-Sense Model of Self-Regulation.
All participants experienced difficulties constructing an illness identity at both acute and chronic phase. Behavioral risk factors were less accepted as causes of stroke. Lack (or inappropriate timing) of information from healthcare providers led to limited medication knowledge and low perceived control of stroke recurrence which generated anxiety, fear, and low involvement in coping. Participants who considered stroke a chronic condition experienced more difficulties. Perceived support from relatives and healthcare providers was beneficial for participation in recovery and health behaviour change.
Despite having mildly disabilities, participants reported difficulties developing illness beliefs conducive to coping, and dealing with their emotional responses. These elements should be considered in tailored programs to improve coping with hidden disabilities post-stroke.
随着急性中风服务的改善，越来越多的人经历轻度中风，需要每天应对隐藏的残疾，这可能受到他们对中风的认知和情感感知的影响。
调查轻度中风患者的认知疾病信念和情绪反应，及其对日常应对的可能影响。
对 24 名平均发病后 7.5 个月（±0.89）的轻度中风患者进行了半结构化访谈。根据自我调节的共同感知模型，对逐字记录的主题分析进行指导。
所有参与者在急性和慢性阶段都经历了构建疾病身份的困难。行为风险因素不太被视为中风的原因。医疗保健提供者提供的信息不足（或时机不当）导致药物知识有限，对中风复发的感知控制能力较低，从而产生焦虑、恐惧和对应对的低参与度。认为中风是一种慢性疾病的参与者经历了更多的困难。从亲戚和医疗保健提供者那里获得的支持对参与康复和健康行为改变是有益的。
尽管存在轻度残疾，参与者报告说在形成有利于应对的疾病信念和处理情绪反应方面存在困难。在制定针对中风后隐藏残疾的应对方案时，应考虑这些因素。
