Centre for Mental Health, Swinburne University of Technology, Hawthorn, VIC, Australia.
Sunshine Coast Mind and Neuroscience Thompson Institute, University of the Sunshine Coast, Birtinya, QLD, Australia.
Aust N Z J Psychiatry. 2022 Mar;56(3):216-218. doi: 10.1177/0004867421998794. Epub 2021 Mar 15.
Although the inclusion of individuals with lived experience is encouraged within the research process, there remains inconsistent direct involvement in many mental health fields. Within the eating disorders field specifically, there is a very strong and increasing presence of lived experience advocacy. However, due to a number of potential challenges, research undertaken in consultation or in collaboration with individuals with lived experience of an eating disorder is scarce. This paper describes the significant benefits of the inclusion of individuals with lived experience in research. The specific challenges and barriers faced in eating disorders research are also outlined. It is concluded that in addition to existing guidelines on working with lived experience collaborators in mental health research, more specific procedures are required when working with those with eating disorders.
尽管鼓励在研究过程中纳入具有实践经验的个人，但在许多心理健康领域，他们的直接参与仍然不一致。特别是在饮食失调领域，具有实践经验的倡导者的存在感越来越强。然而，由于一些潜在的挑战，与饮食失调患者协商或合作进行的研究仍然很少。本文描述了将具有实践经验的个人纳入研究的重要好处。还概述了在饮食失调研究中面临的具体挑战和障碍。结论是，除了现有的关于与心理健康研究中的实践经验合作者合作的指导方针外，在与饮食失调患者合作时还需要更具体的程序。
