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探索少数族裔个体成为遗传咨询师的历程:绘制使遗传咨询职业多样化的路径。

Exploring racial and ethnic minority individuals' journey to becoming genetic counselors: Mapping paths to diversifying the genetic counseling profession.

作者信息

Alvarado-Wing Tatiana E, Marshall Jennifer, Best Alicia, Gomez Joanne, Cragun Deborah

机构信息

College of Public Health, University of South Florida, Tampa, FL, USA.

出版信息

J Genet Couns. 2021 Dec;30(6):1522-1534. doi: 10.1002/jgc4.1419. Epub 2021 Mar 22.

DOI:10.1002/jgc4.1419
PMID:33754442
Abstract

Reasons for limited ethnic and racial diversity among genetic counselors in the United States may be elucidated through better understanding the experiences of individuals from racial/ethnic minority backgrounds who are enrolled in genetic counseling graduate programs as well as recent graduates. Semi-structured interviews were conducted with racial/ethnic minority participants using Journey Mapping to elicit touchpoints that positively or negatively impact success at varying points along the path to becoming genetic counselors. Negative impacts observed at various touchpoints included the following: late awareness of the profession; observing lack of diversity in the field; financial burden of the application process; and microaggressions from peers, program leadership, and clinical supervisors. Positive impacts observed at various touchpoints included the following: group or personal mentors; opportunities to interact with practicing genetic counselors; opportunities to perform 'mock' admissions interviews; program interviews with a conversational interview style; and attending programs in cities with racially/ethnically diverse patient populations. Findings from this research suggest the lack of adequate infrastructure necessary to recruit and support racial/ethnic minority students is a critical systemic issue impeding progress toward diversifying the genetic counseling field. As such, this study reinforces the need for development, adaptation, and implementation of evidence-based strategies to optimize experiences of racial and ethnic minority individuals throughout the entire process of becoming a genetic counselor.

摘要

通过更好地了解那些就读于遗传咨询研究生项目的少数族裔背景个体以及近期毕业生的经历,或许能够阐明美国遗传咨询师中种族和民族多样性有限的原因。使用旅程映射法对少数族裔参与者进行了半结构化访谈,以找出在成为遗传咨询师的过程中,对不同阶段的成功产生积极或消极影响的接触点。在各个接触点观察到的负面影响包括:对该职业的认知较晚;发现该领域缺乏多样性;申请过程的经济负担;以及来自同龄人、项目负责人和临床督导的微侵犯行为。在各个接触点观察到的积极影响包括:团体或个人导师;与执业遗传咨询师互动的机会;进行“模拟”招生面试的机会;采用对话式面试风格的项目面试;以及在拥有种族/民族多样化患者群体的城市参加项目。这项研究的结果表明,缺乏招募和支持少数族裔学生所需的适当基础设施是阻碍遗传咨询领域实现多样化进展的一个关键系统性问题。因此,本研究强化了制定、调整和实施循证策略的必要性,以优化少数族裔个体在成为遗传咨询师的整个过程中的体验。

相似文献

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Exploring racial and ethnic minority individuals' journey to becoming genetic counselors: Mapping paths to diversifying the genetic counseling profession.探索少数族裔个体成为遗传咨询师的历程:绘制使遗传咨询职业多样化的路径。
J Genet Couns. 2021 Dec;30(6):1522-1534. doi: 10.1002/jgc4.1419. Epub 2021 Mar 22.
2
Assessing barriers to the career ladder and professional development for ethnic minority genetic counselors in the United States.评估美国少数民族遗传咨询师职业阶梯和专业发展的障碍。
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J Genet Couns. 2021 Jun;30(3):813-827. doi: 10.1002/jgc4.1381. Epub 2021 Feb 6.
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Conscripted curriculum: The experiences of minority genetic counseling students.征招式课程:少数民族遗传咨询学生的经历。
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Knowledge and opinions of the genetic counseling profession of high school students from underrepresented backgrounds.来自代表性不足背景的高中生对遗传咨询专业的了解和看法。
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Creation of the Minority Genetic Professionals Network to increase diversity in the genetics work force.创建少数族裔遗传专业人员网络,以增加遗传学劳动力的多样性。
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J Genet Couns. 2023 Dec;32(6):1200-1212. doi: 10.1002/jgc4.1760. Epub 2023 Aug 13.

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J Genet Couns. 2025 Apr;34(2):e1969. doi: 10.1002/jgc4.1969. Epub 2024 Sep 15.
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J Community Genet. 2024 Oct;15(5):489-498. doi: 10.1007/s12687-024-00730-x. Epub 2024 Sep 9.
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J Genet Couns. 2025 Apr;34(2):e1958. doi: 10.1002/jgc4.1958. Epub 2024 Aug 27.
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